We at Southern Oregon Friends of Hospice, a 501(c)(3) non-profit, share your passion to provide quality end of life care in residential facilities.
SOFOH originally supported our local hospice programs and educational programs regarding end-of-life care by making gifts of money raised through our resale shop. In 2013, local hospice providers asked us to focus on raising funds to build a hospice-centered residential care facility (RCF), as they believed such a facility will provide a bigger benefit to patients and their families than financial gifts to local hospices.
In response, we have shifted our priorities to provide a collaborative “social model” hospice-focused residential facility run by SOFOH. Our on-site 24/7 care teams will enfold individualized plans of care by all of the four local Medicare-certified hospice agency’s visiting staff including hospice physicians, nurses, social workers, chaplains and volunteers.
Our focus is on enhancing the quality of the end-of-life experience, recognizing the individual’s need for comfort, human touch, freedom from pain and fear, allowing for quality time for sharing memories with loved ones. We wish to ensure that patients die with dignity and respect while valuing their individuality and traditions.
After much searching for the right site to build or the right building to renovate, in late 2015 SOFOH found a historic home for sale. The home had been renovated to maintain the historic look and feel while including modern features and systems updates. This peaceful 1.6-acre parcel is in turn surrounded by a 19-acre park. The property is ideally located just minutes from the two hospitals in Medford. When planned renovations are complete, the home will accommodate twelve (12) hospice and/or palliative care patients at a time.
The SOFOH Board of Directors and Executive Director have overseen the purchase contract and fundraising to purchase this home. We have recruited assistance from many professionals in the area who are lending their expertise and advice to help complete the project successfully.
We have a population of only 291,000 in our two rural counties spanning 4,444 square miles, yet we have well over a hundred healthcare administrators, healthcare professionals (physicians, nurses, social workers, CNAs, PT, OT, chaplains), design professionals (architects, architectural designers, interior designers, landscape designers), business leaders, community members and bereaved family members consulting and serving on committees for our project. We are taking input from them all. We plan to begin accepting patients in Fall 2017. We expect that our facility will serve about 100 patients per year, as well as their families and loved ones.
While this type of end-of-life model is not yet common in the United States, the growing need for end-of-life care services and questions of how to provide for our dying community members begs for innovative, caring solutions. This facility will be the first of its kind in southern Oregon.
We at SOFOH all agree that a repository of design ideas would have made our process easier. We feel as many of your responders to your questionnaire state, that we are re-inventing the wheel as we proceed. We too have received input and design requests about the sizes of the beds, room furnishings, placement of nursing stations, etc. So we wholeheartedly support your idea of a worldwide, web-accessible repository of design ideas and, if you choose to move forward, we would be willing to participate in surveys/studies to see how over-time our design implementations were received. We think it is important to receive feedback from all our users – house staff, visiting staff, patients and family members to make this most vulnerable of times an experience of support and care.
I believe we will implement many suggestions from your Refinement doc, including those from ‘Senior Consultant, Facilities planning firm’, gathering data on “lessons learned” - what has been done and is working well. As well as gathering information in categories by type – patient spaces, family support, clinical support, outdoor amenities etc.-- that will help people classify their contribution.
The mission of SOFOH is to expand awareness and disseminate information to change the culture of death and dying. We can make greater impact and effect greater change by working together collaboratively. We appreciate your suggestions submitted to the IDEO Challenge and our connection. You have helped our process and we hope we can help yours.
We wish you great success with this project! It will help us all!
Best, Selene Seltzer Clinical Healthcare Chaplain Former Design Professional Southern Oregon Friends of Hospice - Hospice House Facilities Team Member
We at Southern Oregon Friend of Hospice (SOFH) in the Rogue Valley of Southern Oregon, USA are in the process of remodeling an existing structure into a Residential Hospice House licensed as Residential Care Facility. We have been working with architects, designers as well a taking input from Clinical Healthcare Hospice providers. We would be happy to collaborate with you. Feel free to contact us. I am a Clinical Healthcare Chaplain (EOL and Pall Care) and former design professional currently working on the project's Facilities Team.
Harvey -Here's a thought. In view of what I interpret as the "scoring" aspect of this Ideo Challenge (and the goal of moving forward....) you might consider adding the responses found in your refinement documents individually as comments and include each person as part of your team for the "team building" aspect.
Hi Dina - I agree. We have tried to provide such a Resource List at http://www.ashlanddeathcafe.com/#!resources/mainPage We also have published a list of TED talks to help start conversations. Another option is a service like Everplans (https://www.everplans.com) which is one of the tools on our Resources list. Also check out Holly Pruett's DeathTalk Project (http://deathtalkproject.com/), another great resource! As a Clinical Healthcare Chaplain offering people personal support and care in their decision making, I believe resource tools help one take the time they need to digest all the information they are presented. Best, Selene (https://challenges.openideo.com/challenge/end-of-life/research/when-does-the-end-of-life-begin-for-me_