What a great story, Anne-Laure, I love that these women fought so hard for something that is inspiring people everywhere to re-think retirement and end of life living arrangements and community support.
It reminds me of the story of Iggy Ignatious who, out of a desire to be near his children but also with friends who understand him, started an Indian retirement community in Florida: http://www.npr.org/sections/health-shots/2015/02/06/384043496/being-with-people-like-you-offers-comfort-against-deaths-chill
It would be interesting to see how these communities fare when medical support is needed, compared with traditional retirement homes that are run by medical professionals.
Thanks for sharing this story of the Baba Yaga House!
Tim, this is a great reminder that we need to listen to our loved ones and the lessons they have for us. Many of us are lucky if we remember that as they're dying, and we need to remind ourselves every day. Grandparents, parents, spouses and friends, even. Thanks for posting. :)
Thank you, and yes, I think that technology could ultimately help in this area. Considering the communication devices used by ALS patients and the fast rise of virtual reality, it seems that something realistically could be developed to help patients who are unable to communicate do so.
In our situation - and I'm certain we aren't the only ones to experience this - my MIL's brain was fine. The cancer had only begun to spread to the brain, thankfully. But, it was her physical situation that prevented her from getting her requests through. In a situation like that, it seems that communication technology would aid in a good death.