We would also like to add; Often when addressing the health of a population the conversation focuses on either the patient or the provider, but not both. In this project, we are looking at both. For healthcare providers to deliver the best care to the patient, we must look at the challenges they face independently and within their relationships with others. The refugee families engage with many sectors when arriving in the United States. We must understand both the provider's needs, experiences, and challenges as well as the families to improve how the mothers and children receive their care. Finding gaps within the current status quo and designing solutions will directly impact the life experiences of the mothers and children that arrive in the United States as refugees.
Our next steps to further develop the idea are (1) to conduct more interviews with all stakeholders to develop - what, when and how information is best communicated. This research will further our understanding of the current challenges that the healthcare providers are facing. We hope to find more detailed issues that affect the current experience and care outcomes. (2) Develop the “forms” (digital or physical) that will communicate the needed information and (3) prototype the communication system process.
We do not know of any systems that deliver on this need. Working with the refugee community, currently, there are systems like EMR that are used the medical sphere and separate systems that are used by Federal, state and local agencies but the systems do not communicate with each other. That is where the information gets lost in the care process.
Where we can take inspiration from are the care coordination systems that some hospitals have adapted to help with chronic care management. We are currently looking at these models and seeing how they can be adapted to this specific population.
I just posted an inspiration page on this topic called "Yahoo listserves helping expecting parents and parents in Brooklyn NY". They are localized in-person and online parent groups. They have sub-communities for every walk of life, interest or need, including dad groups. Take a look. I hope this helps you in your research. Here is the link: https://challenges.openideo.com/challenge/new-life/research/brooklyn-ny-yahoo-listserves-helping-expecting-parents-and-parents