OpenIDEO is an open innovation platform. Join our global community to solve big challenges for social good. Sign up, Login or Learn more

Profile

Recent contributions

(2)

Contribution list

The focus on innovation in different sectors, such as technology, government, philanthropy, business and non-profits is exciting. As we explore the reach of technology, in our world-wide life, we are missing an important ingredient for success.

The focus on innovation in different sectors, such as technology, government, philanthropy, business and non-profits is exciting. As we explore the reach of technology, in our world-wide life, we are missing an important ingredient for success.

Photo of andrea schneider
9 20

Teams

(2) View all

Recent comments

(3) View all

I am inspired by the idea of a Conversation Project, using our networks and relationships to help us do something quite hard, opening up a really difficult subject and getting to a powerful plan with compassion.

I am particularly interested in the patient community as partners in this conversation.  I would like to target patients, as one myself, to connect with other patients in getting this conversation started.

Patient's as Partners is an idea I've been developing in many ways...not least of which we are often left out of the loop because we are the focus of the enterprise.  I say no, we are strong resources and have permission to talk and be with each other that is very different.  We understand the challenge and the reality.  We respect each other and have compassion unlike any other.

I see Patient's as Partner's and Leaders as a Community.  We are writers, lawyers, social scientists, doctors, mothers, fathers, parents, kids and on and on.  We often live the reality of dying for years and years.

On that note:  I want to move from Surviving to Thriving along the entire continuum of care, even at the end.  It is an entirely different approach then just surviving.  I want to add that thought to re-imagining our end of life experience and the time it takes to reach that point.

link

andrea commented on InMyHands

Very important issue.  How does one hospital get the info, if you are out of state for example?  This has been a big problem for people I know, who have Advanced Directives in one hospital and got sick in another state and admitted to a totally different hospital.

link

andrea commented on InMyHands

I like the name "In My Hands" (maybe In My Time") and the concept of having an online tool a lot.  I'm not sure why there would be any age limits.  I'm 68 and would use something like this tool.

I've found approaching and completing an Advanced Care Directives/Plan difficult to do on every level.  I should have finished, at least one, many years ago.  I've had breast cancer since 1990, every stage, every treatment possible.  I've survived it and worked hard to be positive. 

This past April 2016, before having a liver biopsy, I decided I had to do one.  I didn't know if my breast cancer had spread to my liver (it did), which would make my cancer a whole other deal for me.  

I knew I was my own barrier, there was no pressure from anyone to make one decision over another.   I don't have any living family members to take into account, just great friends who would support me in any decision.   So I made an afternoon "party" out of it, with snacks and drinks and some humor.  A computer program tool would have helped me and everyone else as we went through the paperwork process.

Being familiar with the Conversation Project, and anxious to work with them in Portland, OR, through OHSU, I've been looking at ACD's more carefully.  I feel we have a long way to go to make these type of documents user friendly.

The Oregon Advanced Care Directive/"workbook"/paperwork was grueling, tedious, redundant and more upsetting then it needed to be.  I can't imagine having to involve relatives/people of influence and wildly divergent opinions of core issues at the same time.  

Luckily, I have terrific friends, who wanted to work as a team.

The person who agreed to be my health decision maker had a really good idea.  She didn't want to be "alone", without any support from my other friends, when the really tough decisions had to be made.  She asked if I would be willing to ask a couple of other good friends to participate and understand what was going on.  A Team Approach, not just good for me, but just as importantly for my friends.  They could support me and my leader and help her not feel alone when things get hard.

Having an online tool would make a huge difference in terms of recording the final answers, keeping track of the discussion and importantly, next steps.  For example, one of my friends took on the critical job of notetaker.  I never even thought about it!  I hadn't realized how important that role was in this situation.  I wasn't taking notes, I was trying to think, answer questions and make decisions.

She wrote down the "to do's" for me such as developing a list for "my team" and me, of key people in my life, their phone numbers, my websites and anything or anybody needing to know about my health, what was happening to me and when I died.  

I think this idea has promise.

Andrea