We would also like to raise our hand as a potential pilot partner--we're in the healthcare world, but also have a side-operation in our nonprofit providing creative self care and creative engagement for teams. We'd love to discuss this with you as you move forward with this idea. eldercarealliance.org createartatwork.org
Really love this idea! Would be great if it can work with multiple input platforms (slack, text-to-device, web input, etc) to enable participation across all levels of employees. Would be great if there were 2 sizes...the large one is beautiful, but the pricepoint is a bit steep.
Hi Kate--great question! Yessenia could bring the art journal along with her when she and her grandmother visit the doctor--it would provide engagement and a focus for the difficult experience of waiting in the waiting room (a site likely to prompt frustration and/or agitation because of wait time). She and her grandmother could look through the previously created content, and/or add a new page while waiting. They could also use the art journal beforehand or in the waiting room to document "things we want to ask the doctor"; when done in a creative/imaginative way, it will communicate to the MD that grandma is a whole person, and it will also lessen the stigma/negative feelings around reporting symptoms/disease progression. As for how they might find out about it--there could be doctor's office outreach, social media posts, and targeted outreach in places family & friends of those with dementia might go to seek information. Yessenia is one of the potential users who might be easier to reach, as she might be more likely to be starting her search on social media. Success metrics could be measured several different ways--using social media prompts and measuring results, polls sent to users, pre/post measures at project adoption by individual carepartner groups. Most important with a project like this though is that it is qualitatively perceived as successful by the users. This could be measured via ongoing semi-structured interviews, looking at the verbal responses as well as the art-based responses in the book itself (which would also allow for measuring response from the users with dementia--in a way that is inclusive and not reliant on verbal response).