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I am passionate about:
So many things but social injustice is probably at the top of the list as I am fortunate to be able to work for an organisation devoted to creating life changing opportunities for people with an intellectual disability. I love what I do!
A little known fact about me is:
I would love to live on a farm
Show my name on the attendees list for events I am attending:
Thank you again for the feedback. We have decided to answer in more detail on here as well.
Special Olympics offers its services to all qualifying individuals, regardless of their race, gender or age. I think this inclusive approach makes this idea exciting. * thank you. We are also very excited about the potential of this idea for our "athletes". This is how we refer to our members so if we mention athletes in our discussions this is who we are referring to and this includes all ages, race and gender :)
-This is a good idea in terms of addressing a large proportion of the population of South Africa, who are currently neglected in terms of their identified health needs. * Yes. There are an estimated 3 million people with an intellectual disability in South Africa and we are very excited that after reaching out to our colleagues in the rest of Africa there is a clear need to broaden the scope of our idea. -The training programme demonstrably addresses both the stigma and opportunities elements of this Challenge. -Is this training already part of the general medical curricula and needs to be improved? Or it’s not included at all yet? * In South Africa it is not included at all. from feedback from other African countries it appears that it is not included in any that we have had feedback from. -Are there other NGOs in South Africa who provide health training and screenings? * Not that we are aware of for people with an intellectual disability -Does your team have any relationships with South African universities and the South African Ministry of Health yet? Convincing medical training institutions to include this curricula may be smoother if they are involved in developing the content. * We have some relationships and we have reached out to them for feedback and also to request that they be involved in the development of the curriculum. Our global body has also provided feedback in that there are resources that can be consulted in creating these video training tools – including AADMD’s curriculum, including Vanderbilt Kennedy Center’s resources, including our own HA training materials. -Training local people to do the training may be helpful as they understand the communities in which they serve. * The training will be in video format that we feel could be easily adapted by recording a new scripted voice over in the relevant local language. -Branching out beyond medical students to include teachers, community health workers, nurses, physical/occupational therapists, etc. may be interesting. * This is a great idea. We are now looking at the development of modules so that some will be relevant to a much broader cross section. -How does your team plan to meet the needs of family members and caregivers of people with an intellectual disability? * We currently have a family support network and we run what we call Family Health Forums where we educate family members and caregivers on how to care for people with an intellectual disability, we think that if we develop modules as discussed above we may be able to do this kind of training on a much larger scale. -How have you engaged people with intellectual disabilities, their families, the institutions, and medical professionals in the development of the curriculum? * Yes. Our organisation involves people with an intellectual disability and their families, caregivers and educators on all levels of the organisation. We have consulted our clinical volunteers in this proposal and they will all be involved in the development of the curriculum. -In a bit more detail, what does the program include? SSpecial Olympics is the leading voice in raising awareness about the abilities of people with intellectual disabilities.Through sports, we showcase the skills and dignity of our athletes. We also bring together communities to see and take part in the transformative power of sports. We know the odds our athletes must overcome and the barriers they face every single day. We see this at training events and competitions as our athletes push to beat their personal bests -- and exceed them. Outside of our sports and training activities we work to spread compassion and acceptance in a way that can unite the world. Our goal is to awaken everyone -- and every community -- to each person’s common humanity. This vision of inclusion starts at the local level. It is expanding on a global scale. Special Olympics is also the world's largest public health organization for people with intellectual disabilities but in Africa we have a long way to go to provide inclusive healthcare and this is why we have entered this challenge.
For whatever reason I get an error message (oops, something went wrong with our server) when I click Comment.
But what I want to feedback is it may be good to reference that resources exist that will be consulted in creating these video training tools – including AADMD’s curriculum, including Vanderbilt Kennedy Center’s resources, including our own HA training materials.
They would all need to be adapted – they are quite US centric and that should be mentioned so it doesn’t sound like these resources exist and therefore this need is already addressed.
But Ancilla, SOI is thinking about a broader strategy on training health workers – and developing online modules to that end. It goes beyond healthcare providers and also includes ministry officials and public health workers, but I wonder if it bears mentioning the potential impact of the resource you create beyond Africa. I am sure what you develop would have to be adapted for global use, but much of it could be quite relevant