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rebecca commented on Don't mean to dwell on this dying thing

It has been very difficult to  make this work in an institution like healthcare where privacy and distance is a higher priority than support.  I think that is a mistake.  I spent ten years advocating for this program, and fundraising.  Convincing administrators of its value was exhausting for me personally.  My students are carrying it on now.  Other hospitals have expressed interested, but not many (if any) really want to take on the battle with privacy & HIPAA concerns. Families, patients and doctors without exception have been extremely supportive.  If interested I did another talk at Chautauqua Institute. "Dying well in a Death Phobic Society