Social Advance Care Planning
Can we make ACP documentation more social to fit the reality of end of life decision-making?
Profile
I am passionate about: Designing tools for better conversations
Show my name on the attendees list for events I am attending: Yes
Partner, Lead Product Designer
Common Practice
"All models are wrong, but some are useful."
Nick leads the design and research practices for Common Practice, a healthcare innovation company that focuses on one of the most pervasive problems in healthcare today: the avoided conversations about serious illness and death. Nick lead the design team that created My Gift of Grace, the award-winning game about end of life issues that is in use around the world.
Research
0pt
Idea
48pt
Evaluation
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Collaboration
17pt
Total
65pt
Can we make ACP documentation more social to fit the reality of end of life decision-making?
I think we need to provide better support for the social nature of decision-making both before and after decisions are made. Surrogate decision makers often suffer from the symptoms of PTSD (see http://www.pallimed.org/2011/03/trauma-of-surrogacy.html) and I believe support for clearer conversations before decisions and normalizing the experience of surrogate decision makers after are both important. There are expanding circles of support that can be drawn on for the entire process, and making those explicit and giving people tools to support that process would likely help reduce trauma and encourage people to talk more openly about this process.
Bettina - Poker and Planning is a great idea! Card games are a great way to support better conversations for seniors (and I'd argue for almost anyone - they're becoming more popular across generations). That was one of the key reasons we designed My Gift of Grace (www.mygiftofgrace.com) as a card game and why we recently released event kits that support game events similar to Poker and Planning. You can find out more about those at common-practice.com/eventkits and see a talk I gave at the Mayo Clinic's Transform conference on why games support social decision-making here: http://common-practice.com/transform2015
Nick commented on Social Advance Care Planning