Thanks Anne-Laure, Kim's story is very touching and inspiring!
I like how you highlight the importance of different senses in communicating. That would definitely an important aspect to explore, as touching her hand and looking into her eyes communicated so much more than words.
Another important aspect I realized we should take into account in the design process is the aspect of education. When I was talking to my parents about my frustration/awkwardness about the communication with my grandmother, they expressed that for them it was a no-brainer that even though my grandmother was never so touchy-feely, in this phase of life they would of course hold her hand etc. For me, it was something I had to learn in the process, where they had experienced it before.
Thanks Marije! I definitely think some kind of ritual would definitely be helpful here. However, the challenge in this case was that this was the 3d time we thought my grandmother was dying in 3 years, but she has been so resilient that even though she was so incredibly fragile the first two times, she held on to life. I think a ritual that would allow space for these uncertainties would be very helpful. In my grandmother's case, I could imagine that we would have a ritual acknowledging that she was entering the last phase of life, similar to what you describe for someone who suffers from Alzheimer's.