I like this idea, @RobertSmith. I'll be including it in the refined version of the proposal. As a patient myself who has lived this, I can probably come up with many of the questions myself. Like "how do I open this car seat?", "how can I manage the fatigue of parenthood with the fatigue of arthritis?. Also, depending on how much budget I have, I think I could find enough patients to include photos of real Moms and Dads.
Hi Melissa, I have personally worked on a resource for people with arthritis concerning pregnancy and parenting. Through this work, I have connected with a lot of Moms and Moms to be because although I have 2 children of my own, I wanted to ensure the solution represented the broader needs of people with arthritis. Resource - http://www.arthritispatient.ca/information-resources/pregnancy-parenting/ Survey results - http://www.arthritispatient.ca/projects/pregnancy-parenting/
I'd be happy to discuss how we can work together. I know both pharma and other private that have developed apps so it may make some sense to build on some of these existing technologies. I have some well-established contacts in this area.
A few thoughts: ** health care system variations -these vary country by country and some doctors will need to be convinced to use the app in their operations. It's very decentralized in Canada, for example, so it may be hard to scale the app more broadly. ** as a user and person with arthritis, I do think it's helpful to connect people. I think people with arthritis feel alone in their journey, especially at a time when society has so clearly stated that we should be happy. ** Engage health care professionals. They engage with people /patients more directly when they are facing pregnancy. Adoption won't happen without their help. There are many layers in all health care systems.
Anyways, I'd be happy to have a call with you to discuss further. Thanks for listening :-)
Hi Eva - I know someone who has received a small grant to develop a resource for patients with chronic illness facing pregnancy and parenting. She has RA herself and has helped me in developing the resource on pregnancy and parenting with arthritis. I wonder if it might be helpful to connect with her as well as myself to see what might be possible together. I truly believe that pregnancy is a time where a lot of patients, especially those with chronic illness, are most vulnerable to lack of coordination of their care. I have RA and with my own 2 pregnancies, I had a difficult time doing this and the frustration mounts at a time when we should all supposedly be happy!