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Enhancing Community Institutions Involvement to support SRH issues of Women with disability

KYRHDO aims at mitigation of disaster due to SRH related problems of women and girls with disability in Addis Ababa, Ethiopia

Photo of zebib nesru

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What specific problem(s) are you trying to address?

women with disabilities in particular, are often viewed as asexual, incapable of engaging in a sexual relationship, and unable to bear and raise children, which severely limits the information and types of reproductive health services made available to them.They face prejudice, stigma and double discrimination” in their daily lives. Due to this reasons, the situation is now becoming a disastor as far as the group is concerned, there are many disability women with HIV virus in their blood, there are not few who are being raped and contracted HIV/STD/FISTULA, being pushed to begging on the streets due to unwanted preganacy and gave birth, if lucky.There are some who commit suicide due to being pregnan tdead due to poor (no) prenantal service

What are some of your unanswered questions about the problem(s) you are working to address?

We are thinking about the type of training module that can optimally impact the deep rooted perception of Iddir’ leaders and their members with in short period of time. . Social accountability is also an emerging concept in our community so how can we practically in place score cards/ follow up, measuring and corrective mechanisms, once we empower them, is also a question in this project.

Explain Your Idea

Ethiopian community is traditionally organized at the village level in the form of social institution called ‘Iddir’ that originally dealt with funeral and nowdays,most of them have undergone a reform so that they are now rapidly taking critical postion within the society interms of social interactions , social coherence and solidarity. The typical features/opprtunities of these institutions are first Iddir is comprised of the majority local residents who have different background interms of age, sex, profession, health condition, religion and other factors.It helps to easily dissiminate the practice For example, imparted health professional who is member of the Iddir will take that particular knowledge, skill and attitude to the health setting and like wise the teacher to school setting, religious personnel to church and mosque setting Second, Iddir’s in general are much respected and infulential institutions of the community Third, Iddirs traditionally are semi-formal insititutons with both formal and informal types of communication and structure that widen the level and type of engagement upon the issue.The last but not the least is families of the disabilities and very few disabilities are members of IddirsThe project will have three developmental phasses such as first empowering the leaders of the iddirs, then arranging discussion forums among the Iddir members finally the project will organize consultation meeting between disability association members.

Name the three most important ways that your idea will address your identified problem(s).

1. Changing the old perception of Iddir leaders in the community. Here the key point, after the training these leaders should essentially be activists/advocators, educators and visible models among the community as far as the issue of SRH/disability concerned. through ,KYRHDO/EWDNA will prepare training manual on SRH/DISABILITY with the contents include disability and gender based violence,disability and reproductive health carrier (relatioship,marriage,family planning use,pregenecy,child birth and nurturing),disability and reproductive health 2. Organizing community forum to be led by changed leaders of their own Iddirs 3. Organizing consultation meeting of the community Iddir members and Women with disability living in the same area

How is your idea unique?

The first uniqueness of this idea is it gives the chance for two organizations which have different experience, specialty and constituency to work together, KYRHDO and EWDNA. The former has been working on community based SRH activities for the last fifteen years and the later is an organization working and completely committed for women with disability. Uniqueness in this project is it will facilitate consultation meetings between the communities (members of the Iddir’) and disable women not only to discuss on the action plan but also help to prepare fertile grounds to accountability.This will help the two bodies; Iddirs’ and Women with disabilities’. That means practically, these community institutions will revise their by laws from this perspective and include some amendments on the topic of memebership of disabilities, participation of disabilities in the Iddir’s , how to facilitate friendly environment for disabilities particulaarly SRH-ISSUES for women with disability.

What are some outstanding concerns or questions that you have regarding your idea?

The most outstanding and concerning parts of this project are first,developing very rigorous training manual/handbook for Iddir leaders about SRH/disability the second one is organizing very successful consultation meeting between the community members and Women with disability.

Who are your end users?

Our end users are women with disability age between 15-29,lives in one sub city of Addis Ababa,capital of Ethiopia.There number is 1200+ and their families.Through this project,They entertain very supportive,responsible community and environment so that they can easily get information and service about SRH. Along with this,the project impact the knowledge,attitude and behavior of ten Iddir' members and their family which is approximately 25,000 about disability and SRH.

Where will your idea be implemented?

  • Ethiopia

What is the primary type of emergency setting where your innovation would operate?

  • Other

Tell us more about the emergency setting that you intend to implement in

Due to sever form of stigma and discrimination ,myths and harmful socio-cultural attitudes ,Women with disability are not exercising their right on SRH and subjected to unsafe abortion,unwanted pregnancy,HIV/STI,Fistula and other related psych-social problems.

What is your organization's name?

Kulich Youth Reproductive Health and Development Organization (KYRHDO)

Tell us more about you.

Kulich Youth Reproductive Health and Development Organization (KYRHDO) is a local non-governmental organization which is established in 2003 aiming to address RH, HIV/ AIDS and Gender related issues. The Amharic term ‘kulich’ refers to vivid or vibrant. This name was employed to indicate that youth RH issues were not openly discussed among family members, community members or publicly in media. The vision of KYRHDO is "to be a vibrant youth reproductive health and development NGO which aspires to see a self-reliant society free from problems of SRH as well as socioeconomic problems"Ethiopian Women with Disabilities National Association (EWDNA) was founded in 2002 The association focuses on the issues of affecting the lives of women and girl

Organizational Characteristics

  • Women-led organization
  • Disabled Persons Organization (DPO)
  • Locally/community-led organization

What is the current scale of your proposed innovation?

  • Community - 1+ communities within 1 country

Experience in Implementation Country(ies)

  • Yes, for more than one year.

Expertise in Sector

  • Yes, for more than a year.

Organization Location

Ethiopia

What is your organizational status?

  • Registered non-profit, charity, NGO, or community-based organization.

What is the maturity of your innovation?

  • Early Stage Innovation: exploring my innovation, refining, researching, and gathering inspiration.

Website

www.kyrhdo.org

How has your idea changed based on feedback?

The feed back has contributed on refinment of each phases of the project idea.That is how to develop mannual,the contents and the training modalities,what should be the end result of consultation in relation with social accountability of Iddirs,what should be the part of the members of the association.I doesnot bring basic change yet passed through impressive refinment.

Who will implement this idea?

KYRHDO/EWDNA

Using a human-centered design approach, you may uncover insights that lead to small or foundational changes to your organization’s existing strategy or processes in order to unlock the potential of your idea. How would your organization go about making such changes?

KYRHDO and EWDNA have signed a memorandum of understanding to work together on disability SRH issues. This would help to harness the experiences and specialty of the two organizations for one common goal. KYRHDO as lead applicant is responsible to coordinate the project implementation and oversee funding issues. The team will be formed from the two organizations that routinely plan, implement, monitor and report the status of the project both the activity and financial aspect. Major operational modifications are presented to the Board of Directors for feedback and approval prior to implementation. This regular communication and openness to change has allowed our work to stay modern, refined and locally-led.

What challenges do your end-users face? (1) What is the biggest challenge that your end-users face on a day-to-day, individual level? (2) What is the biggest systems-level challenge that affects your end-users?

1) The most individual challenges reported by disabled women during feedback phase include the lack of information on their rights, lack of self-esteem and poverty that lead to violence disabled women are facing in their community. (2) The biggest systems- level challenges are the blind gender laws and policies on disabled women issues as well the lack of representation of disabled women in decision making structure as a particular group of women with particular issues

Tell us about your vision for this project: (1) share one sentence about the impact you would like to see from this project in five years and (2) what is the biggest question you need to answer to get there?

To see all women with disability to ENJOY thier natural gift SRH.

What is it that most attracted you to Amplify instead of a more traditional funding model?

KYRHDO and EWDNA are exhaustively looking for a fund support their common agenda sexual reproductive health and underserved and facing disastor segments of the population, women with disability. Amplify challenge has always been under our short lists among others to realize our common vision

How long have you and your colleagues been working on this idea together?

  • Between 1 and 2 years

How many of your organizations’s paid, full-time staff are currently based in the location where the beneficiaries of your proposed idea live?

  • Between 10-20 paid, full-time staff

Is your organization registered in the country you intend to implement your idea in?

  • We are registered in all countries where we plan to implement.

My organization's operational budget for 2016 was:

  • Between $50,000 and $100,000 USD

What do you need the most support with for your innovation?

  • Business Development / Partnerships Support

10 comments

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Comment
Photo of OpenIDEO
Team

Hi zebib nesru and team!

An important reminder, Refinement Phase closes this Thursday, October 26 at 11:30pm PST.

We can only consider complete submissions, so please make sure that you have reviewed the Feedback and Refinement Phase Checklists and answered all of the questions on the platform. Note that we added one more multiple choice question to the end of the form.

If you're having trouble figuring out how to edit your idea, please refer to this guidance: https://docs.google.com/document/u/1/d/e/2PACX-1vQUuV2N-wO8Oy8MysMAza3CbKUA1ZcMenollZjPh4FA0fGgIDcVXwWtEe6CLh36_Wik5AypEHixreFH/pub

Best of luck!

Photo of Ashley Tillman
Team

Hi Zebib, great to have you in the Challenge! The question regarding 'emergency settings' specifically pertains to emergency's within the place you are implementing and how your organization or team manages tackles them. For example, they might be emergencies caused by people (political in nature) or they might be natural states of emergency like a drought or flood. In addition to what you already shared, can you share a little bit about any emergency or crisis situations that pertain to your work and how you plan for and address them?

Photo of zebib nesru
Team

In out reality,community based institutions are always the first to respond folllowing any emergency disaster in the community.Empowering these groups mean pivotal to multiple issues of the society.

Photo of Ashley Tillman
Team

Hi Zebib, I couldn't agree more, I'd just make sure to highlight the different ways you see this happening within you local context. Thanks for sharing!

Photo of OpenIDEO
Team

Hi zebib nesru and Team -

We’re excited to share feedback and questions with you from a set of experts that are supporting this Challenge.

We encourage you to think about this feedback as you continue to improve your idea, whether that’s refining it or adding more context. You are welcome to respond in the comments section and/or to incorporate feedback into the text of your idea. Your idea and all associated comments will all be reviewed during the final review process, but all critical information should be in the body of your contribution somewhere.

*A strength area is working in collaboration with another organisation to get the most traction to shift social norms on a difficult issue to address when entrenched in patriarchal systems.
*A possible growth area is going beyond the development of training modules, as formal training may not be enough to fully address a complex and entrenched issue like access to SRHR.
*Community-based discussions can be a great model to change perspectives and behaviors.
*It would be great to learn more details of your implementation plan. What will be the content of the discussions? How will they be led?
*How is your idea focusing on a community affected by or at risk of conflict or disaster? We’d love to learn more along these lines. Are there ways your partner organization will support to this end?
*How you will develop the training manual that you imagine using? How will you incorporate the perspectives of people who will lead and go through the trainings? What are the changed behaviors we are trying to see from Iddirs once they have undergone the training?
*Is this a new way of working for you: to work in partnership and join forces and resources to influence a governance system?
*I think this idea is desirable and would be beneficial, but it would be great to understand how the impact of training without other influencing and advocacy may be limited.
*It would be great to think about the target users journey from start to finish. What happens to them now? What happens once the Iddirs have gone through this process- what are the ways in which her life changes?

In case you missed it, check out this Storytelling Toolkit (ideo.to/OZznV4) for inspiration on crafting strong and compelling stories as well as the recorded Office Hour (ideo.to/Gf1Cs6). Storytelling is an incredibly useful tool to articulate an idea and make it come to life for those reading it. Don’t forget - the last day to make changes to your contribution on the OpenIDEO platform is October 26 at 11:30PM PST.

Have questions? Email us at amplify@ideo.org

We look forward to reading more, and thank you for the important work that you are doing!

Photo of Chelsea Takamine
Team

Hi Zebib! I hope that you are well. The link to the URL that you provided appears to be broken. I would love to learn more about your organization - do you have another link?

Photo of zebib nesru
Team

I donot have especial link ,we can communicate through Email:nesruzebib@gmail.com

Photo of zebib nesru
Team

We donot have especial Link,we can communicate through e-mail nesruzebib@gmail.com

Photo of ACISDA AFAR
Team

Great idea. I would like to suggest you to consider the following points. a) what is your project phase-out or sustainability strategy for your idea. b) how can change the 'iddir' leader attitude only conducting by meeting and consultation.

Photo of zebib nesru
Team

The sustainability issues will be adressed if the leaders of Iddirs can really change and be inclusive for every action they intent to have as far as disabiltiy is concerned.We are planning to give standard training for the leaders so that they can be activists,models and educators of thier circle,members of the Iddir.Thanks