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The Heartbreak, the Joy, the Journey

I am a mother of an intellectually disabled son and want to share my story to help others who may just be embarking on this journey.

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What is a provocation or insight that might inspire others during this challenge?

There is a clear need for an accessible and basic support system for new parents of intellectually disabled children. This investment in time energy and resources will enable families to be self empowered, resulting in a quality of life one can only imagine for our most vulnerable population.

How does this research relate to our use cases and personas?

It provides insights into a population of parents and children who could benefit with programs and support that is not readily or easily available or accessible.

Tell us about yourself:

I am a healthcare information technology professional, single parent, and fierce mama of two amazing sons. Welcome to Holland by Emily Pearl Kingsley-1987 is my reality and I want to pay it forward.

Are you currently an employee of Sutter Health or UCB Pharmaceuticals?

  • Yes

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Photo of Kate Rushton

Hi Jennifer!

Thank you for sharing your story.

I noticed in your attachment that 'My wish is to prepare unsuspecting parents with a support system that includes education, access to care, patience and compassion', who would the key players be in this support system?

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