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Pregnant and Parenting Moms Forums

Forums for pregnant and new moms living with HIV bring together consumers and providers to discuss pregnancy, birth, and parenting.

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In no more than 3 sentences, please tell us who your idea is designed for and how it reimagines the new life experience.

Forums are designed for pregnant and parenting women living with HIV and health care providers in the Chicago area. Bringing together mothers living with HIV, who are often left out of the HIV/AIDS conversation, and direct providers allows for an improved experience for women and their reproductive journeys.

In the United States, women make up 20% of all new HIV infections as reported by the CDC. Women of color, and black women in particular, have been especially hard hit and represent the majority of women living with HIV and women newly diagnosed. Women living with and affected by HIV face several challenges to getting the services and information they need, including poverty, cultural inequities, and sexual violence, and many women place the needs of their families above their own. Because of this, women are not often the focal point of conversations around HIV and prevention.

PACPI was intentionally founded to give women living with HIV access to the infectious disease and reproductive care they need for themselves and to give their child the best chance at a healthy life. PACPI focuses on the woman, meeting her medical and social service needs, in order to improve her health and to reduce the risk of HIV transmission to her infant to less than 1%.

Forums bring together pregnant and recently-delivered women living with HIV as a group of support. Forums also serve to increase dialogue between mothers and health care providers so services can be improved. Forums improve the new life experience by addressing the diverse challenges of all mothers, babies, and those who care for them.

At what stage is your idea?

  • Piloting: I have started to implement my solution as a whole with a first set of real users.

What early, lightweight experiment might you try out in your own community to find out if the idea will meet your expectations?

We have held one pilot forum, which was very well attended. Twenty six women and several representatives of the Chicago Public Health Department convened to discuss barriers and support to accessing and staying in care for mothers living with HIV. Participants expressed that more focus groups like this are needed so their voices can be heard.

What skills, input or guidance from the OpenIDEO community would be most helpful in building out or refining your idea?

The OpenIDEO community could provide valuable assistance in best practices for moderating focus groups as well as translating feedback into real change.

Tell us about your work experience:

PACPI is a nonprofit organization founded in 2000. Our mission is to eliminate deaths from pediatric AIDS and to reduce transmission of the virus from mothers to their children in the state of Illinois. Our background is focused on providing direct services to women and mothers living with HIV. We a

This idea emerged from...

  • An organization or company

Are you an expecting, new, or experienced mom?

  • no

Are you a healthcare practitioner?

  • no

Are you a current employee of UCB Pharmaceuticals or Sutter Health?

  • no


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