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"Osteoporosis makes me mad!" : The emotional toll of living with fragile bones

My mother is a kind person, but her emotional journey with Osteoporosis is deeply layered with fear, frustration, and vulnerability

Photo of Chris Protos
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How does your research relate to the Challenge?

People living with Osteoporosis must navigate challenges in the health system and their personal lives, which can feel overwhelming and lead to frustration, ultimately preventing them from living this lives they wish to lead.

Tell us about your research:

I had the chance to interview my mother and her experiences of being diagnosed and living with Osteoporosis. "Osteoporosis makes me feel mad!" is the first thing she said when I asked, what does living Osteoporosis feel like? It not like my mom to be mad about much, so we explored just what exactly made her feel that way. (note: the highlights below are not in rank order) 1. "I'm mad my bones are deteriorating and I can't control it". My mom has always prided herself in staying in shape, eating well, and not smoking. Her diagnosis was a signal that things were happening with her body that she had little to no control over. She was frustrated that she had done all the right things and still had a chronic disease. 2. "Its scary that I'm shrinking - I've lost 2 inches in the past few years". The scary part is not just physical change but what that means for her independence. She says, I can barely reach the high shelf now... what will happen in few years. 3. "Who would I call?" Mom contemplated what it would mean to have a fall and a fracture. She lives alone and doesn't know what she would do. This feeling of vulnerability is not only about the fracture, but also taking care of herself in the recovery period. She says "If I'm off my feet, how will I take care of my grand kids? Who will take care of me. I don't want to be a burden on anyone" 4. "Oh, you are just getting old!" When mom tells her physicians about her symptoms, she feels frustrated that this is the standard response. She feels like her doctors don't want to listen to her problems, investigate her symptoms, and collaborate to find solution.

What is an insight, question, or provocation that might inspire others during this challenge?

How might we better understand the rough points in the health system and remove frictions to help my mom and millions of women like her live the life them want to live?

Tell us about yourself

I am a health designer for UCB, the sponsor of this open innovation challenge.

(Optional) What might you need to understand to be successful in the Ideas Phase ahead?

More people living with Osteoporosis to share their story. More passionate innovators to listen and make a change in the world.

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Photo of Manisha Laroia

Thanks Chris Protos for sharing your insights in the Research Phase!
The interview with your mother is heart-wrenching and also an inspiration to work towards solving this challenge.
What ideas did your findings spark? Now is the time to share them in the Ideas Phase!

As you work on your submission, be sure to check out the following resources:
1] Challenge Personas and Journey Map: These stories provide a window into the lives of older adults and the health system, for which you are designing
2] Resources Page: This collection of resources spans osteoporosis, designing for health, and the Challenge process to support you in crafting your submission.
3] Evaluation Criteria: This is the criteria against which we will be evaluating your ideas. We highly suggest revisiting this throughout the Challenge process.
Here is the page:
https://www.openideo.com/content/healthy-bones-additional-resources

Submissions must be published on the OpenIDEO platform by July 3rd at 5 p.m. PST - but we HIGHLY encourage you to upload the first draft of your submission sooner rather than later, so our community team has time to provide feedback on your idea and because it’s just more fun.

Let me know if you have any questions. We'll also be hosting Office Hours on June 5th 8:30 AM PST. Add it to your calendar or save this link to join. [https://ideo.zoom.us/j/680604401]

See you in the Ideas Phase,
Manisha
OpenIDEO Community Fellow

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