OpenIDEO is an open innovation platform. Join our global community to solve big challenges for social good. Sign Up / Login or Learn more

A Directional Survey Assessing Patient Experiences With Osteoporosis Diagnosis

Identified challenges around and barriers to diagnosis (grounded in patient experiences and perspectives) to uncover opportunity areas.

Photo of David Lieber
6 3

Written by

How does your research relate to the Challenge?

By identifying challenges around and barriers to diagnosis (grounded in patient experiences and perspectives), we can hone in on 1) the context of the problem and 2) identify touch points where there are potential opportunities for design interventions/solutions.

Tell us about your research:

For my research, I designed a "directional" survey targeted to users who have been diagnosed with osteoporosis (n=6 due to limited resources and rapid nature of the research). Questions both tested a few hypotheses around barriers to diagnosis and explored the conditions of the diagnosis experience itself. I have included a few charts from the survey and a "top line" of the results below: - The majority indicates that they were slightly to not at all familiar with osteoporosis before their diagnosis - Some users in the sample feel that the condition goes untreated because 1) the symptoms may be seen as too small to note 2) the symptoms may feel similar to other conditions' symptoms 3) they may not know to get bone density tests. A few note that once they mentioned the symptoms, their doctors prompted bone density tests. - Many were diagnosed with osteoporosis after a bone density tests/screening, either prompted by broken bones, routine check-up panels, or the mention of potential symptoms - Underlying assumption/indication: everyone from the sample has the means to get routine screenings or access to a healthcare provider by nature that they were all diagnosed - "I would never have known I had osteoporosis if I hadn't mentioned a small symptom to my doctor who then ordered a bone density test” - "I treat my osteoporosis and so do my sisters, but a lot of people don't know when they should get a bone density test, so osteoporosis might go untreated.”

What is an insight, question, or provocation that might inspire others during this challenge?

- Patients from the sample indicate that they tend to be unfamiliar with osteoporosis as a condition --> potential lack of exposure to resources and conversations with their doctors about osteoporosis - how might we educate older adults about the possibility of osteoporosis and equip them with a toolkit to spark discussions about it? - Some indicate that they were asymptomatic (did not know to be tested) or that they thought certain symptoms were attributed to other conditions --> how might we educate older adults about the possibility of osteoporosis and equip them with a toolkit to spark discussions about it? - They indicate that once diagnosed, they were familiar with the condition and motivated to get treatment/stick to it. A consideration: - While most diagnosed users of the sample were able to access healthcare providers and testing, a large segment of the population does not have access to this care --> how might we educate older adults about the possibility of osteoporosis and equip them with a toolkit to spark discussions about it, especially if they do not have the means to access healthcare providers? I'd want to do further research on these results to validate that knowledge/ID of the condition is a bigger barrier than lack of motivation to get treatment, since most (of the albeit n=6 for the purpose of this exercise) indicate they were motivated to get treatment after they were diagnosed/more familiar with the condition.

Tell us about yourself

I work in research and have a background in Cultural Anthropology, so I'm interested in a variety of topics.

If you participated in a Research Event, tell us which Chapter or city you came from:

N/A - I recently opened an account and participated independently, but I'd like to attend the NYC chapter event.

6 comments

Join the conversation:

Comment
Photo of Miss Faith

Hello my name is Faith Kathy from UK, My life is back!!! After 8 years of marriage, my husband left me and left me with our three kids. I felt like my life was about to end, and was falling apart. I contacted you and after I explained you my problem. In just 3 days, my husband came back to us and show me and my kids much love and apologize for all the pain he have bring to the family. We solved our issues, and we are even happier than before you are the best spell caster Dr.Solution i really appreciate the love spell you castes for me to get the man i ever loved back to my life i will keep sharing more testimonies to people about your good work Thank you once again at (solutionhome10@gmail.com).in case you are in any problem you can contact this man for help he is always there in his temple to help you solve your problem Contact Email (solutionhome10@gmail.com) call or WhatsApp him (+2349060273197) you can still save your marriage if u really love your husband.

View all comments