OpenIDEO is an open innovation platform. Join our global community to solve big challenges for social good. Sign up, Login or Learn more

End-Of-Life Experiences A Guide For Carers Of The Dying

Treating people as an individual in their end-of-life experiences

Photo of Thi Bao Ngoc Nguyen
4 3

Written by

Reimaging end-of-life is meaningful and significant to patients and their families. However, it is difficult to image about these dreams as people are uncomfortable discussing them with clinical caregivers for fear of judgement and ridicule. Many of the dying find death frightening to contemplate, and may deny that their life is drawing to a close. Their value has long been under appreciated by the scientific and medical communities. Particularly, this process is often dismissed as drug-induced hallucinations, dementia or delirium by medical staff with limited understanding of the dying process.

In short, it is essential to respect the person’s individual needs. Everyone needs to be treated individually, which means exercising sensitivity, and being open and courageous in exploring the best approach. By understanding End-of-Life Experiences, the carers could help the patients to fulfil their last wishes and become more receptive to their dying process

When a patient is severely ill, he is often treated like a person with no right to an opinion. It is often someone else who makes the decision if and when and where a patient should be hospitalized. It would take so little to remember that the sick person too has feelings, wishes, and opinions, and has – most important of all – the right to be heard - Elizabeth Kubler Ross


Join the conversation:

Photo of Ngan Nguyen

I love your idea and useful information in this article. But can you explain how to make patients to be open about their end-up life experience ? Thanks!

Photo of Thi Bao Ngoc Nguyen

I have done a research about your concern. And I think the process of end-of-life experience should be conducted through a 4-step approach including Initiating Discussion, Clarifying Prognosis, Identifying End-of-Life Goals, and Developing a Treatment Plan. And also, I think the involvement and support from the families and friends is important in making the patients to be more open and engage in such process.
I would love to discuss more with you if you have any further concern.
Thank you for your comment and contribution!

View all comments