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Don't mean to dwell on this dying thing

I created an end of life support program for terminally ill teenagers and young adults.

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Rebecca Brown challenges our American discomfort with death by sharing experiences from her work with hospitalized adolescents and young adults who are suffering or dying. She suggests that our "pornographic" relationship with death creates fear, anxiety, and loneliness for those who are dying, and that for the living,

What is a provocation or insight that might inspire others during this challenge?

To recognize that our discomfort with death makes dying a dread and fearful passage.


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It has been very difficult to  make this work in an institution like healthcare where privacy and distance is a higher priority than support.  I think that is a mistake.  I spent ten years advocating for this program, and fundraising.  Convincing administrators of its value was exhausting for me personally.  My students are carrying it on now.  Other hospitals have expressed interested, but not many (if any) really want to take on the battle with privacy & HIPAA concerns. Families, patients and doctors without exception have been extremely supportive.  If interested I did another talk at Chautauqua Institute. "Dying well in a Death Phobic Society 

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