The previous post in the Inspiration phase was titled: 'A picture is worth a thousand words; how maps of people and services can help people share and communicate'. This suggested using a visual map of a one page A4 sheet, drawn from person-centred planning and practice - which could then become a centre piece of discussion for the person, their families and everyone involved, about who is visiting and how often.
The aim of this idea is that simple visual maps or diagrams that could be developed for use by the person and their families at the end-of -life to enable and empower them. Different maps and diagrams might well be developed at different times and for many purposes, in the end-of-life process. These maps would not only enable them to see clearly who is involved in their care, also help reassure that they have not missed out on services that might help - and enable them to share their stories and plan more effectively.
One page maps, or visual diagrams can represent in a simple visual way many issues, e.g. who is involved, and they can help create a shared space to plan together. These enable families, carers, professionals and the person at the centre to see at a glance information and ideas that they wish to show, e.g. the people and agencies involved. A number of different designs might possibly show; the frequency of visits, or who is involved and what they do, hopes, dreams and stories of the person and families, and thoughts about going forward. Different traditions have different designs, and utilities.
Maps or visual designs might draw on several traditions which have been adapted and developed for end-of-life to resource this approach. All of these are rich traditions and which it is not possible to describe adequately in a few words, but some key resources are identified at the end of this post.
The first tradition, is that of person centred practice. Person centred planning and practice, is a way of pulling together everyone involved in the care - together with the person at the centre to identify what is important to, and for, them. Person centred practices have co-developed resources, templates, organisational design thinking and training materials, which are designed to be accessible for children and adults with Intellectual Disabilities or with Mental Health conditions. Examples and videos are shown on the web sites detailed in the resource section.
The second tradition is the systemic and narrative approach ,which has used and elaborated, by Glenda Fredman and others who work with older adults, and children and families at the end-of-life (please see resources at the end of this post). Systemic thinking and practice looks, in part, at the nature of the conversations and multiple stories that affirm and enable the person and families to shape the way the end-of-life is imagined, as well as the way of being with people.
A third was posted as a conversation in the inspiration phase, is an approach sometimes called a multi-actor diagram, this can look at the dynamics and interactions between professional and services.
All of these traditions can be resources, and provide inspiration.
Glenda Fredman makes the point that the map is not the territory. Differing traditions may be helpful at different times during the end-of-life planning. They all have strengths as well as descriptions of training, resources and examples of visual maps of services. All of these could contribute to improving the end-of-life experience and planning now, and all of them have implication for the design of services.
link to Inspiration post: https://challenges.openideo.com/challenge/end-of-life/research/a-picture-is-worth-a-thousand-words-how-maps-of-people-and-services-can-help-people-share-and-communicate
Fredman, G. (1997). DEATH TALK -Conversations with Children and Families. London. Karnac Books.
Fredman, G., Rapaport, P. (2010) How do we begin? Working with older people and their significant systems. In: G. Fredman, E. Anderson & J. Stott, (Eds) (2010). BEING WITH OLDER PEOPLE - A Systemic Approach. London. Karnac Books
http://dulwichcentre.com.au/coordinating-stories-in-therapeutic-conversations-by-glenda-fredman/ Video of approach. Page also has downloadable resources.
http://dulwichcentre.com.au/the-tree-of-life/ Visual mapping of co-created stories
www.allenshea.com. US based site Resources about person centred practices including end-of-life
www.helensandersonassociates.co.uk. UK based site with resources and templates for person centred practices including for end-of-life