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Online platform to connect people who are dying to the living for the passing down of experiences

This platform would address significant issues for dying people: connection, impact on other people's life, stop to death denial, acceptance

Photo of Chiara Pineschi
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Who is your idea designed for and how does it reimagine the end-of-life experience?

The platform would connect people at the end of their lives with other individuals. Everyone could have the chance to reflect upon death, life, meaningful values, experiences. It brings acceptance of death, connection, sense of meaning and sense of impact for the dying on the living.

In thinking about how I could reimagine dying, I envisaged a platform where every person could share something meaningful they learned through life, be it a funny experience, a significant value, actually anything that could be useful to other people and that could positively affect their lives. I thought of a platform, because I believe the core need of dying people is a crave for connection: at the end of life, people would like to feel part ofsomething, which might be indeed represented by the closest relatives, but also somethingbigger: through the platform, people could have an impact potentially on everybody on earth. This would allow dying people - who now are often at the borders of society, and feel themselves like a burden - to instead be an integral and essential part of it still.  At the same time, the platform could be an important basis for every person to experience death in a more indirect, though weighty way: in reading about dying people's life experiences, one cannot overlook the fact that death is inextricably intertwined in them, for these people come to reflect on life before passing. As such, the platform would address the "tabu" of death, which in modern society is mostly denied, or talked about in negative frameworks only. Moreover, shared experiences need not to be sad or heartbreaking: I would instead encourage people to share funny and significant stories or insights, that might then bring acceptance of both the bad stuff (fear, anxiety, negative emotions) in the good stuff.

What early, lightweight experiment might you try out in your own community to find out if the idea will meet your expectations?

I could try and simply talk about this idea with my community to see how they perceive it.

What skills, input or guidance from the OpenIDEO community would be most helpful in building out or refining your idea?

Knowledge of how to build a website / online platform.

This idea emerged from

  • An Individual


Join the conversation:

Photo of Chris Lee

Hi Chiara,

I like the idea of sharing and connection to make the reality of dying less burdensome for the one who is dying. What about extending the idea to the survivors as well? What could the living and the dying say to each other that helps before, during and after the end of life? Would you need a special section or way to manage those different conversations?

Photo of Chiara Pineschi

Hi Chris, thanks for your thought on my idea. I envisaged the platform specifically to link people who "know" they are going to die for some reasons (an illness, I thought) because these are the people who most come to reflect to their past experiences and thoughts and try to wrap up what they learned. I think they might have a perspective or stance on their life particularly due to their "doomed" condition. This resonates greatly with your proposal as well! Living could as well interact with the dying and connect with one another. I did not imagine the platform to have any kind of limitations. Everyone could contribute with something they find useful for both the passing and the survivors.
Regarding the managing of conversations, I imagine every person on the platform to have a personal profile. Every contribution needs to have a title or an hashtag which could allow the gathering of the similar ones under the same name in a sort of "newsfeed", as Facebook has. In this way, people could look for a specific person whose contributions they like, and they could as well search for trends or specific topics. Thanks again for commenting!

Photo of Chris Lee

Hi Chiara,

The newsfeed idea is interesting. I would not imagine that any one person would have numerous observations every day, but I could see where someone could benefit from insights from a number of different people experiencing the same condition. The more observations, the more normal it seems.
What if this system ended up acting more like a "quote of the day" feed? It could provide a story or a quote from someone in the system that is selected based on the similarity of the source of the quote and your own situation. It would be a little reminder each day that you aren't the only one experiencing this. Then it offers the ability to link to the source of the quote, search for others, leave a response for others to see, etc.

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