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5 minutes self care moments for family members/care givers of hospice patients.

From mindfulness and relaxation, to music, externalising feelings through art; or prayer (as culturally appropiate) .

Photo of Cielo Jimenez
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Who is your idea designed for and how does it reimagine the end-of-life experience?

Preventing caregivers exaustion or depression, increases the opoortunity for closeness and caring support for terminally ill patients. A lot has been done in terms of grief counseling (pre and post beteavement) Yet, it takes more than doing the heavy lyfting to prevent care givers burnout. By facilitating brief, nurturing self care activities at hospice facilites, family members can recharge their bateries and be more fully present to support their loved one during their end of life journey.

What early, lightweight experiment might you try out in your own community to find out if the idea will meet your expectations?

5 to 10 minutes care givers support groups, as part of hospice house or intensive care hospital services

What skills, input or guidance from the OpenIDEO community would be most helpful in building out or refining your idea?

Quick but meaningful video clips and/or activity kits (ideally multilingual friendly) to make this interventions mobile and time effective so caregivers can return to the patient's bedside in a matter of minutes. And to turn the outcome into coping skills or transitional objects whenever possible.

Tell us about your work experience:

I was a graohic designer for 15 years. Now I have a masters in Marriage and Family Therapy. Have worked for hospice and the mental health industry since 2010.

This idea emerged from

  • An Individual

7 comments

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Photo of OpenIDEO
Team

Hi Cielo, interesting post! Any chance you could find an image to go along with it? Images help grab attention and tell a story. You should be able to use the Edit Contribution button on the top of your post and follow the instructions to add images from there. Looking forward to seeing more of your inspiring insights on OpenIDEO.

Photo of Morgan Meinel
Team

Cielo, I really love your idea - thanks for contributing it! 

On our Palliative Care Unit at Mount Sinai, we often care for patients who have such dedicated and devoted caregivers that rarely leave the bedside. Many times, our staff will encourage family members to take a walk, get something to eat, or go home to rest/shower- some activity that may lend to their well being. Often though, family members are apprehensive to leave the bedside for more than just a short period of time. As a Palliative Care Team, we understand the preciousness of time spent with loved ones.

I would love to see your idea incorporated into a hospital setting. On our Palliative and Hospice care Unit, we offer family members 10 to 15 minute sessions (either in the patients room or in a small consultation room) of massage and relaxation therapy and art therapy as well. The benefits of these sessions are immense! and it allows the person to remain on the hospital unit or within close vicinity of their loved ones - lessening their anxiety. 

Your idea is not limited to the hospital setting which makes it so great. Hospice and Palliative Care workers who care for people at home can also potentially utilize therapies such as mindfulness and relaxation , massage, etc. and ultimately help caregivers incorporate self care and techniques to help them cope with the challenges often present during the end of life process and find a sense of grounding.

A mobile friendly app is a great idea too - making it even more accessible to a larger population of caregivers.

Thank you for your contribution and all the best to you! 

Photo of Cielo Jimenez
Team

Thanks Morgan,
I love your additions to the idea (specially the app, and the quick massage in the room), this site is proof that great things can happen when minds work together for a noble purpose.
You are right, families I did pre-bereavement counseling with, were often apprehensive to miss their loved one's last breath. On the other hand, I've also heard regret stories in therapy, specially from caregivers who were burned out on top of grieving, which of course affects both sides. 

Photo of Morgan Meinel
Team

Thank you, Cielo! it's an honor to be a part of such a great community! I look forward to seeing how your ideas blossom :)

Photo of Anne-Laure Fayard
Team

Hi Cielo,

I love your idea. I have seen one of the sisters of one of my friends taking care of her during her last month at the hospital. She left her family (3 kids and husband) in South of France and came to Paris. After 2 weeks of being non-stop by her sister, she went to her family for a few days as she was closed to be burnt out. Beyond the hospital context, I think providing support to caregivers is important too. It sometimes becomes difficult to make the distinction between your life and the other's life. I spent a lot of time taking care of my friend when she was still at home (taking her from treatment and doctor visit, bringing her food, visiting her at home, calling her everyday...) but I sometime ended up not allowing me to be healthy and alive. Fortunately, my family was there to remind me. I think finding ways to give people some support, energy as well as ways to create boundaries is important.
I love the example provided by Morgan. The app idea is interesting too.
Looking forward to seeing this idea evolves. 

Photo of OpenIDEO
Team

Hi Cielo, interesting post! Any chance you could find an image to go along with it? Images help grab attention and tell a story. You should be able to use the Edit Contribution button on the top of your post and follow the instructions to add images from there. Looking forward to seeing more of your inspiring insights on OpenIDEO.

Photo of Cielo Jimenez
Team

This is just a spigboard, based on my experience working with hospice patients and their families. Adding and refining fron multiple disciplines is welconed.