THE CEREBRAL PALSY SUPPORT CENTER.
The CEMHRI aims to provide assistive products and rehabilitation to children with Cerebral Palsy and respite care to their Caregivers.
Cerebral Palsy is the documented leading cause of neurodisability in Nigeria affecting about 700,000 children. Two-thirds of the affected children have severe functional disability, which adversely affects treatment outcomes.
What problem does your idea solve?
Cerebral Palsy is the documented leading cause of neurodisability in Nigeria. Children with CP are unable to access basic social amenities, educational facilities and health care systems due to the severe functional impairment, lack of access to assistive mobility services and an erroneous belief that they cannot learn.
Caregivers often have to leave sources of livelihood to cater to these children. Research findings document Psychiatric and or medical disorders in the caregiver.
Explain your idea
Our plan is to set up and operate a highly subsidized multidisciplinary inclusive day care center within a hospital that provides services that will cater to the needs of the children and adolescents with cerebral palsy while providing a respite for the parents/carer as they go about their economic pursuits.
The cerebral palsy multidisciplinary day care centre will provide a holistic care for children and adolescents with Cerebral palsy while also providing respite care for the parents/caregivers.
The center will be multidisciplinary in nature and will have the full complement of special services needed by the children. This will include: educational therapists, speech therapists, physiotherapists, occupational therapists, nurses and Doctors.
This full complement of staff will allow them receive education as well as approipriate medical and rehabilitative care.
The center will be furnished with required aids in all the specialties that will enhance learning and the total development of the children with CP.
Our framework includes:
-Sensitization of the public about the service
-Sensitization of primary health care centres, paediatric-neurology and psychiatric clinics about the program.
-Collation and invitation of cerebral palsy patients from health care centres
- Screening and appropriate co-morbid physical and mental health challenges.
-Screening and appropriate referral of at-risk parents/caregivers.
- Assesment to determine suitable assistive devices.
-Provision of mobility/assistive devices (standers, walkers, motorized wheel chairs, braces and other walking aids).
-Possible collaboration with relevant stakeholders such as the Government.
Children and adolescents with cerebral palsy and other neurodevelopmental disorders.
Caregivers and Parents of children with the Cerebral Palsy.
How is your idea unique?
There are presently no known multidisciplinary centers within hospitals that cater to this group of children and their parents, in the capacity of a day care centre tending to the holistic needs of the child.
In a society where the affected children are faced with the added burden of stigmatisation, poverty, inadequate facilities for rehabilitative care and diminished educational opportunities, our idea plans are on providing not just mobility aids to children and adolescents with cerebral palsy, but equipping them to integrate as self reliant members of society, ensuring that no one is left behind.
Our idea also looks beyond the patient with Cerebral Palsy to the caregiver.
We plan to screen Caregivers of the children with CP whom research has shown to be at high risk of developing physical or mental illnesses and refer appropriately.
The idea also seeks to provide respite while they go about to get a means of support and livelihood for themselves.
Tell us more about you
The CENTRE FOR MENTAL HEALTH RESEARCH AND INITIATIVE (CEMHRI) is a non-profit organization that is dedicated to promoting mental health awareness and eliminating the stigma that is associated with mental illnesses through service and research.
The Centre for Mental Health Research and Initiative (CEMHRI) is a non-profit and non- organization (http://www.cemhri.org) that is dedicated to promoting mental health awareness and eliminating the stigma that is associated with mental illnesses and disability through service and research. Our team consist of health and disability specialists, legal and financial experts. We have worked extensively with policy makers, Lagos State Ministries of Health, Education, Social Welfare and Justice.
We strive to motivate, involve, and educate the general public about mental health in order to help those suffering from mental health issues to find out how and where to acquire assistance.
What are some of your unanswered questions about the idea?
-Recruitment and renumeration of staff to man and run the multidisciplinary day care centre.
-Capacity of the centre.
-Feasibility of long term running of the centre.
-Possible abandonment of children especially due to poor record keeping and lack of social security systems in Nigeria.
Where will your idea be implemented?
Experience in Implementation Country(ies)
Yes, for more than one year.
Expertise in Sector
I've worked in a sector related to my idea for more than a year.
We are a registered non-profit, charity, NGO, or community-based organization.
Prototyping: I have done some small tests with prospective users to continue developing my idea.