OpenIDEO is an open innovation platform. Join our global community to solve big challenges for social good. Sign up, Login or Learn more

Reaching Out - A Community Outreach Program

Bringing urgently needed, otherwise unobtainable therapy services to children living with disabilities in isolated,rural Ugandan communities

Photo of Fiona

Written by

What problem does your idea solve?

A staggering 9,349 children (2-17 years of age) in Kabarole District in western Uganda have a disability but we are the only organisation providing a community outreach program. Currently however we are limited in our capacity, meaning we are only offering services for 7% of children, leaving 93% of children living with a disability (or 8,722 children!) in the region with little or no support whatsoever. This is simply unacceptable and as such we propose a dramatic up-scaling of this project!

Explain your idea

Our pilot community outreach programme offers high quality, specialised and affordable therapy and rehabilitation assessment, treatment, education and support to children with disabilities, their families and carers, to enable them to lead more independent lives. The isolated nature of many rural communities means that such care would otherwise be out of reach due to the long distances that would have to be travelled, and the costs incurred,to reach Fort Portal town, the closest large city. By taking our rehabilitation services into these communities we are not only offering essential, otherwise unobtainable, therapy services but we also help to dispel the stigma surrounding disability typically found throughout Uganda, that disability is a curse or the devils work. This community approach also helps to break down the barriers of misunderstanding, discrimination and isolation experienced by the families within their communities. Furthermore, our holistic approach to disability means that we are able to transform the lives of children, not only in terms of their physical abilities, but also by providing training to parents and caregivers which allows for greater integration into normal societal life. This integration also includes education, and we provide training and support to both students and teachers in local government and private primary schools within the district to promote inclusive education.

Who benefits?

We expect the number of children living with a disability who we assess and treat aged between 0-17 years to increase from just over 600 up to more than 2,300. The impact this will have across the region will transform not only the lives of the individuals being treated but also the communities within which they live, cannot be emphasized enough and we hope that if the up-scaling with your support is as successful as we envision it that we can further increase our capacity in the years to come

How is your idea unique?

Kyaninga Child Development Centre is the only organisation in the whole of western Uganda to provide therapy services to the doorsteps of those most in need. Our team of experts includes physiotherapists, occupational therapists, specialist medical staff and speech therapists, which means that we can tackle disability from all sides and provide a truly holistic approach. By bringing our services out into the community and making them freely available we enable family units to remain together and not go through the extremely traumatising and heart-breaking separation that is attached with the typical institutionalisation of children with disabilities. Additionally, our outreach program draws fellow community members and neighbours into the circle of support which promotes a more stable environment for the individual child by creating a balanced and diverse system of assistance consisting of professional support from KCDC and emotional support through community inclusion.

Tell us more about you

Based in Fort Portal, in the Kabarole District of western Uganda, KCDC was established to provide much needed high quality, specialised and affordable assessment, treatment, education and support to children with disabilities, and their families and carers, to enable them to lead more independent lives. We provide occupational therapy, physiotherapy and speech language therapy assessment and rehabilitation to children aged 0-17, in order to help them to meet their developmental goals.

What are some of your unanswered questions about the idea?

Through our pilot outreach program we have been made acutely aware of the high number of children and families who are surviving without any support for their disability. Even with the expansion of this program we still feel it would be beneficial to the community if we could link in with other healthcare providers but are yet to find suitable partners in this field. We also had a large number of requests during our pilot scheme to provide mobility aids and other adaptive equipment which can dramatically improve a childs function and independence, but is incredibly difficult to source in Uganda and so again we are hoping to partner with a donation-based charity who can export us second-hand mobility equipment at an affordable price

Where will your idea be implemented?

  • Uganda

Experience in Implementation Country(ies)

  • Yes, for more than one year.

Expertise in Sector

  • I've worked in a sector related to my idea for more than a year.

Organizational Status

  • We are a registered non-profit, charity, NGO, or community-based organization.

Idea Maturity

  • Early Growth/Roll-out/Scaling: I have completed a pilot and am ready or in the process of expanding.

How has your idea changed based on feedback?

We learnt that families felt that increased frequency of visits to the health centres would be greater benefit to their children. As a team, we agree, but logistically, we would need a 2nd mobile unit which would entail an additional vehicle and trained staff. An immediate change is to provide more comprehensive home exercise programmes and to empower parents to meet and support each other between visits, which also has the benefit of reducing the isolation felt by parents. We also identified that during the outreach, other community members would stop and watch through windows and doors, and would even go back home to bring their or a neighbour’s child to be seen. This is a great opportunity to raise disability awareness by providing brief talks to those interested and will now be implemented during all outreach programmes and we are considering running 1 day courses for selected, enthusiastic community members who could help identify other children to benefit from our services.

Who will implement this idea?

KCDC’s 3 co-founders are dedicated to making this idea a reality: 1 works full time on the day to day running of the project and project development, 1 works part time and is focused on project development, networking and fundraising and the 3rd is a member of the board. In addition, 6 full time rehabilitation therapists implement the programme in the field, work with parents, healthcare workers, community leaders and other local organisations. All staff are located within Fort Portal, Uganda

Using a human-centered design approach, you may uncover insights that lead to small or foundational changes to your organization’s existing strategy or processes in order to unlock the potential of your idea. How would your organization go about making such changes?

All team members are included in the decision-making process. Additionally, we consider the communities we work in as an extension of our team and encourage their suggestions and feedback . Changes to project implementation are often suggested by team members working in the field, which are then brought to management level for consideration and idea formulation, before they are taken to the board for further development and possible implementation and practice adoption. Team members are then brought back in to discuss implementation. All team members are also involved in creating and delivering our 3-year strategic plan, with quarterly meetings for review and goal setting. This helps make sure everyone feels valued and involved in the decision-making process

What is it that most attracted you to Amplify instead of a more traditional funding model?

The long-term support and development Amplify will give to successful organisations will be invaluable as we grow and develop. In addition, the human-centred design matches our organisational approach and values. We know we do not have all the answers yet and that there are more changes to be made, and we hope that we can do that together with Amplify. It’s this dynamic, fluid approach from Amplify which allows for ideas to evolve and adapt and we feel this is exactly the model we wish to follow

What challenges do your end-users face? (1) What is the biggest challenge that your end-users face on a day-to-day, individual level? (2) What is the biggest systems-level challenge that affects your end-users?

The biggest daily challenge faced is the lack of available and accessible health services to enable each disabled child to live a healthy and functionally independent life, because of lack of funding, poor understanding of their needs and community prejudice, stigma and isolation. The biggest systems level challenge is that as one of the most marginalised groups worldwide, children with disabilities and their families experience a complete lack of inclusion or consideration in all levels of society, in terms of access to education, healthcare, leisure activities, access to public buildings, transport and many other daily activities that the rest of society takes for granted

Tell us about your vision for this project: (1) share one sentence about the impact you would like to see from this project in five years and (2) what is the biggest question you need to answer to get there?

Impact: By 2022, we aim to achieve greater inclusion for 5,000 CWDs within their communities–education, health care and employment. Question: How can we transform the mindset of leaders and politicians to modify budget allocations to reflect and support the potential of children and other PWDs and facilitate them to play an equal role in their community, receive appropriate medical care and rehab, have access to inclusive education and be supported through appropriate employment opportunities

How long have you and your colleagues been working on this idea together?

  • Between 1 and 2 years

How many of your team’s paid, full-time staff are currently based in the location where the beneficiaries of your proposed idea live?

  • Between 5-10 paid, full-time staff

Is your organization registered in the country you intend to implement your idea in?

  • We are registered in all countries where we plan to implement.

My organization's operational budget for 2016 was:

  • Between $100,000 and $500,000 USD

If your team/idea/organization has a website, please share the URL below.

www.kyaningacdc.org www.facebook.com/kyaningacdc

28 comments

Join the conversation:

Comment
Photo of Rachel Roberson
Team

Thank you for your post, I look for such article along time, today i find it finally. this post give me lots of advise it is very useful for me ! http://ludokinggames.com

Photo of Himanshu Mishra
Team

Most of the people loves to play the card game but here https://heartsgameonline.net from few days I am addicted to play the heart card game.this is the most amazing card game ever on internet.

Photo of OpenIDEO
Team

Hi Fiona and Team,

We’re excited to share with you feedback and questions from the Amplify team and an external set of experts. We encourage you to think about this feedback as you continue to improve and refine your idea. You are welcome to respond in the comments section and/or to incorporate feedback into the text of your idea. Your idea and all associated comments will all be reviewed during the final review process.

-Taking an outreach approach to care has huge value in that it provides services to the disabled children in need whilst also raising awareness / acceptance amongst community members and breaking down stigma. This is a 360 approach which I am not aware exists in many developing contexts. Outreach also means that those too poor to travel to services, and often the most vulnerable and in need, are reached directly.
-This is very focused on user needs with research carried out on the demographic and data on how many people affected by disabilities compared to how many being reached.
-How will the costs of health workers and transport/accommodation to these rural areas be sustained at scale?
-In your initial piloting, what were your learnings? What worked and what didn’t work? What would you adapt from your existing pilot to improve the approach?
-What is the proposed mode of implementation?
- What is the proposed team of care workers and health professionals visiting communities, and the cadence of those visits?
-Where does the funding come from to sustain once the project has been set up in a broader geographic area?

In case you missed it, check out this Storytelling Toolkit for inspiration for crafting strong and compelling stories: http://ideo.to/DXld5g Storytelling is an incredibly useful tool to articulate an idea and make it come to life for those reading it. Don’t forget - June 4 at 11:59PM PST is your last day to make changes to your idea on the OpenIDEO platform.

Have questions? Email us at amplify@ideo.org

Looking forward to reading more!

Photo of Fiona
Team

Hi Amplify team, thank you for your comments and questions.

Although we are currently depending on generous donations from individuals and foundations, we have also been holding fundraising events to support ourselves and raise awareness. This includes 2 triathlons, a marathon and a gala ball. In 2016, these events raised over $11,000 for the project, and our projections are higher for this year as their popularity increases.

One part of our plan for long term sustainability is through the production of goat’s cheese. In the past 6 months we have established Kyaninga Dairy, with an initial herd of 46 dairy goats, to produce high quality goats cheese that is otherwise unavailable in Uganda. This exciting new business model will provide sustainable employment for families using our clinics and also see improvements in combating child malnutrition, which affects more than 25% of children that we see.

In 2012, Uganda was voted the number one tourist destination by Lonely Planet which reflects the huge increase the country is seeing in tourism. Fort Portal, where KCDC is located, is lucky enough to be situated right next to Kibale Forest which has the highest population of chimpanzees anywhere in the world, and it is these chimps, second only to the gorillas that attract so many tourists to Uganda. In the last 5 years there has been a sharp increase in the number of hotels and lodges in the area, but there has been no increase in the volumes of available cheese.

Kyaninga Dairy, through its sale of high-end cheese products will provide KCDC with a sustainable and continuous form of revenue which will enable us to continue the critical interventions and enable us to expand our reach beyond our current capacity.

In our initial piloting, we introduced a small registration fee, and most therapy sessions were conducted within our centre in Fort Portal, but we quickly learnt that families found the cost of transport to the centre and the registration fees too high and it was preventing people from attending. This pivoted our model to reach children in their homes, without any fees. This was much more successful and we had a sharp increase in referrals and attendances. We then found that our numbers had got too high to visit each child at home individually and so we spoke with the parents and agreed to create small groups in each community to meet in one home, church or community centre.

As the numbers of children continued to increase, we pivoted our model again to work with the local health centres at a sub-county level – reaching more communities in one visit. We are also trialling partnerships with the village health teams to help mobilise and refer children with disabilities and support the families within the communities. This is our current pilot project and it will likely have more changes but families are grateful that services are available close to their homes. We still see some children in their homes, those with multiple and complex disabilities or when we need to evaluate the environment in relation to their therapy intervention.

We are now looking at how we can improve attendance at these outreach visits and we will be forming parent discussion groups to highlight the main challenges faced by the parents when not attending. If we are correct in our theory that for some families, even travelling to the local health centre is too difficult with their child, we may consider using our vehicle, or look to raise more funds in order to source a local minibus, to go out and collect these children and bring them to the health centre for their therapy appointment and parent education session.

We are also regularly asked by struggling parents to supply commodities, such as sugar, soap and maize flour. Rather than giving these away, we would like to look at creating income generation activities among the parental peer groups in each community, in partnership with other local community organisations.

Our team currently consists of physio and occupational therapists, a nurse and an orthopaedic officer. We want to increase this to include a speech therapist, a special education teacher and a social worker to be able to help each child reach their full potential and treat all aspects of disability that we encounter
Visits to health centres and home visits are conducted twice monthly, but home visits can be weekly if a therapist is working more intensively for a short period to achieve a goal or milestone.

What is the proposed mode of implementation? –I’m not sure what you mean by this, can you expand it a little more so that I can answer appropriately?

Photo of Ubuntu
Team

@Fiona It's great to read about the scalability of your at-home and in-community visits. We currently see a significant portion of our students at their homes and are looking to expand that program so creating small groups that would meet in nearby community centres is insightful. Have you found any issues with infrastructure when you host events in these locations?

Also - in regards to your Kyaninga Dairy partnership/program - do you also utilize this as an avenue for outreach about your programs? We bottle water locally and have a cafe on our property which we use to help get the word out by including information about the Special Needs Centre on the packaging and in the restaurant but are always looking for new ways to leverage this program to reach a bigger audience.

Photo of Fiona
Team

Hi Ubuntu, thanks for your comments.

The biggest challenge we face regarding infrastructure in our community outreach locations is space availability!! Whether we are in individual homes or in the local health centres, we are always restricted by the availability of space to work, and as the demand for our services grows this will become a greater problem.
We are thinking of buying a couple of put up tents that we can transport in our mobile health unit, so that we can work outdoors, with shade and protection at all our locations. We don't want to lose the relationships that we have developed with the health centres and they are always short of space, even without our presence and so we must find ways to make it work for both of us.

In regards to the Dairy, this is primarily a project to raise money to support the child development centre and ensure sustainability. We are using it to raise awareness of the centre and the work we are doing through leaflets available at the sales outlets, as well as selling it directly from our centre in Fort Portal, information on the packaging and with social media and marketing through our websites.
Is your cafe run by some of your beneficiaries/families? Does it help with your sustainability? I like that idea of a cafe/coffee shop on your property. Someone else suggested to us, on a different platform, that running a internet cafe or hub would be a good opportunity to get foot traffic through and raise awareness while also providing facilities that are needed by all.

Best wishes

Fiona

Photo of embracekulture
Team

Also - to your comment "We also had a large number of requests during our pilot scheme to provide mobility aids and other adaptive equipment which can dramatically improve a childs function and independence, but is incredibly difficult to source in Uganda and so again we are hoping to partner with a donation-based charity who can export us second-hand mobility equipment at an affordable price." I would highly recommend reaching out to Handicap International or Leonard Cheshire, both have offices in Uganda and can supply devices.

Photo of Fiona
Team

Thank you for the suggestions of reaching out to Handicap International and the Leonard Cheshire home in Uganda. We have contacted both of these before, without a successful outcome, but we shall certainly try again, do you have a direct contact with either that we could try with an introduction - happy to do this through email rather than on the public forum.

Many thanks

Photo of embracekulture
Team

Fiona,
Do you have any children with Autism in your program? Can you provide any behavior interventions? The feedback we received from parents sparked an interesting idea a parent intervention program (used in India with Autism). I'd love to get your thoughts on the idea. We can shift that conversation to email but I think there is some interesting alignment with your program.

Photo of Fiona
Team

Hi embracekulture, thanks for your comments. We have had a few children with Autism come through our programme, and we have tried some behaviour interventions, particularly through our occupational therapy programme and the school outreach programme, but we found that parents were very resistant to the recommendations that we made, in terms of addressing behaviours, creating routine and structure and even the understanding of Autism and it's management. Similarly, we have found local schools extremely reluctant to accept any children with Autism.
I would be very interested to talk further with you about a parent intervention programme, and possibly some training from your team to ours to strengthen our knowledge and skills when working with children with Autism.
We are currently running parents groups for children with cerebral palsy, with mothers trained to facilitate, and I think this idea could also work really well with other disabilities, including Autism.
Many thanks and best wishes

Fiona

Photo of Jessica Charles
Team

Hi, Fiona. It's great to see how your program is reaching at-risk children with disabilities in remote regions of Uganda. My organization, Kupenda for the Children, is also working to improve health and education access for families impacted by disability in rural parts of Kenya. I'm wondering if any of your training materials are documented and replicable in other regions/countries? I'm also wondering how your "outreach program draws fellow community members and neighbors into the circle of support" and how you inspire "emotional support through community inclusion"? What do you do to encourage this community-based support for children with disabilities? Is there a lot of resistance? I'd love to learn more about your model. Thanks! ~ Jessica

Photo of Fiona
Team

Hi Jessica, thank you for your interest and comments about our idea. I have also seen your idea and think it's great that you are trying to tackle the stigma and misunderstanding of disability through community and religious leaders. That must be very challenging too, but I hope you are well received through the communities.

Our main training material that we use is the London School of Tropical Medicine 'Getting to Know Cerebral Palsy' parent education programme. This has been used worldwide for many years, and is written particularly for low resourced settings. We have some staff who are trained as facilitators, and work with 'expert mums' to deliver the programme to other parents. This works really well as it creates a network of support for the families, who are usually so alone and isolated by their communities, to support each other and can bring other family members into the support network.

We have found that our outreach programme, which makes monthly visits to local communities, either local health centres, schools or individual homes, helps raise awareness, breaks down barriers and increases inclusion in the communities as parents become more empowered and have a greater understanding of their child's abilities and disabilities. We run annual community activities, including an end of year party and an inclusive sports and family fun day and encourage all communities to attend.

We find that the mothers or grandmothers, who are the child's main carer, are extremely keen for any support, education and rehabilitation that we can provide, but there is often resistance from other family members, but once they start to gain greater understanding of disability and see improvements in their child, their resistance reduces.

I'd love to learn more about your project too, are any of the children in the communities receiving
therapy and rehabilitation as well as training the spiritual and community leaders?

Best wishes

Fiona

Photo of Jessica Charles
Team

Hi, Fiona.

I love the idea of Expert Mums – how powerful! We run parent workshops and have found the same energy from mothers and grandmothers who care deeply about their children but have been discouraged by ineffective traditional practices and judgment from those in their families and communities. We provide these women with information, link them to services and help them establish or participate in parent support groups. We also run Community Disability Awareness Days that sound similar to your parties and family “fun days.” I just downloaded the ‘Getting to Know Cerebral Palsy' manual and shared it with my colleagues and signed up for the LSHTM International Centre for Evidence in Disability newsletter. Thanks so much for sharing these great resources. Please feel free to share any other materials you've found useful.

And yes, we do provide education and medical care for children with disability in Kenya – some through our offices and others directly to communities and through special education facilitators. And we’ve found that we can reach even more children with these services when we lead trainings that inspire compassion and support from the spiritual leaders, government officials, teachers, and community members that surround them.

Thank you again for your response and for the important work you are doing in Uganda!
Jessica

Photo of Fiona
Team

Hi Jessica, I'm really happy that you've found the Getting to Know Cerebral Palsy programme, I'm sure you will find it really useful. We are currently writing and piloting a Getting to Know Early (0-2 years) Cerebral Palsy programme too, which is really exciting.

Other materials that you may find useful are:
- Disabled Village Children - also available to download
- World Health Organisation and UNICEF websites - there is loads of information and downloadable resources
- World Cerebral Palsy Day website (worldcpday.org) - lots of resources here too.

Best wishes with your project, it sounds like you are doing some fantastic work,

Fiona

Photo of Lauren Ito
Team

Hi Fiona,

Really appreciate your emphasis on community involvement and resources for parents throughout the treatment process. In your unanswered questions section, you mentioned wanting to partner with healthcare providers. Could you elaborate a bit on what type of partnership with healthcare providers would be particularly beneficial for your idea?

Excited to hear more!

Photo of Fiona
Team

Hi Lauren, thanks for your comments.

We currently work with local health centres in the district who are able to provide basic medical support for the children we work with, but for children with more complex problems we are forced to refer to specialists at the regional or national hospitals. Many families never go to these appointments due to the long distances that would need to be travelled, the costs that would have to be incurred and the difficulties often associated with travelling with a disabled child. For those that do attend, we rarely get any feedback from these institutions regarding further management or treatment and the parents often don't fully understand what the doctors have said or done.

On this basis we would like to develop partnerships with local health specialists from the nearby regional hospital to conduct clinics directly from our centre, in particular focusing on epilepsy management, nutritional support and neuro-developmental disorders. This way we can include the medical support in our interventions, providing a more holistic management approach to each child and we expect this to lead to greater progress.

We would also like to partner with a great equipment manufacturer who can make walking frames, wheelchairs and custom seats from locally resourced materials, and can be creative to meet the needs of each child and their environment. Ideally, we would hope to get one of the designers / manufacturers to come out for a one or two month voluntary placement and work with some of the local craftsmen and pass on their skills.

Best wishes

Fiona

Photo of OpenIDEO
Team

Hi Fiona, one last little item, don't forget to publish your idea so others can see the great work you are doing!

Photo of Joseph MUNYANDAMUTSA
Team

Dear Fiona, thank you very much for this great idea! i have been working in Rwanda in similar intervention. There is an unmet need of reaching out in communities. Did you develop any training materials for parents or you provide professional services on your own? How do you involve parents?

Photo of Fiona
Team

Hi Joseph, thanks for your comment, I have also seen your project idea using APT in Rwanda.

In terms of training materials for parents, we have introduced the Getting to Know Cerebral Palsy programme, which is a parent training programme, originally developed in Bangladesh and now used worldwide. This programme teaches parents in a very hands on way about their child's disability, epilepsy, and the best ways of handling and positioning, feeding, developing communication, everyday activities and play. We run this programme alongside our community outreach programme into local health centres.

We also provide professional services and have a team of physiotherapists, occupational therapists, a speech therapy assistant and an orthopedic officer to deliver much needed rehabilitation for the children and expert education and skills training to parents and caregivers. We believe that parents/caregivers must be involved every step of the way for the child to make progress and be successful.

Best wishes with your project

Fiona

Photo of Joseph MUNYANDAMUTSA
Team

great work indeed! i have translated/adapted/contextualized the materials in the "getting to know cerebral palsy" and this material is effective. the material was translated in kinyarwanda, the only traditional language spoken by all Rwandans.
keep this good work
Joseph

Photo of carole null
Team

@ Fiona this is a wonderful project and impressive as it began from an individual need. Goes to show how much each of us has great potential to turn around any situation. I love the innovation within specific homes of the locally made parallel bars! With most of the rural community being affected by poverty, this sure serves the purpose while eliminating the conventional bars high cost element. Being outdoors, I see this encompassing inclusive play with siblings and neighborhood children which is key to wholesome recovery.
Do you have any data on the various disabilityconditions you are targeting supporting as I see this as necessary when sourcing for donations of mobility aids and other adoptive equipment. LDS charities donate wheel chairs and walking aids in 48 countries including Kenya. With your creativity, you may consider seeking their support in production of wheelchairs for sustainability as well. See: http://www.mormonnewsroom.co.ke/article/lds-charities-providing-mobility-to-the-kenyan-disabled

Photo of Fiona
Team

Hi Carole, thanks so much for your comment. We find that using locally sourced materials is very effective for all our equipment, and you are right - they can become a tool for interactive play, often siblings encourage a child to 'chase' them along, or around, the bars and allows children with disabilities to interact with other children in the community, rather than being stuck indoors.

Our data collection tells us that since opening in January 2015 we have assessed and treated more than 700 children with disabilities, of which:
•40% have cerebral palsy resulting from illness in pregnancy, birth asphyxia or early childhood illness.
•21% suffer from a developmental delay, also resulting from birth asphyxia or early childhood illness.
•13% have severe speech/language difficulties.
•9% have congenital orthopaedic conditions such as club foot.
•7% have Down’s syndrome.
•7% have acquired a brain injury from either severe malaria, bacterial or viral infection or through injury.
And of all these children:
• 37% suffer from severe malnutrition.
• 29% have a form of epilepsy

Many of the children we work with are in need of mobility aids and special seats, and we are doing our best to supply these from local sources. Thank you for the link, I will certainly follow that up and see if we can get a connection looking at sustainable mobility aids.

Best wishes with your project idea

Fiona

Photo of Isaac Jumba
Team

Hi Fiona, this is really a great idea. I love the video, as it communicates the possiblities your centre is creating for the children in Western Uganda.

Could you share more light on ways your team has been thinking of making the project sustainable (esp when it comes to sourcing of specialized equipments) apart from goodwill support? Are there ways to get the community and Uganda people excited about being part of this, even though none of their families has a disability? It will also be great to highlight on how you help with the transition of the children back to the community after they are 17 years.

Best, Isaac

Photo of Fiona
Team

Hi Isaac, thanks so much for your comment, and I'm glad you loved the video. We are happy to share our ideas for sustainability.

For long-term project sustainability we have set up Kyaninga Dairy, with a herd of 45 dairy goats, specially bred and selected to have high milk yields and nutritional value to produce high quality fresh goats cheese that will be sold in high end stores in the capital city, Kampala and in tourism lodges in Western Uganda. We had consultants from Neal's Yard Creamery in the UK come to Uganda for 4 months and train our dairy team on milk harvesting, animal husbandry and cheese production. We are currently producing enough goats cheese to supply local lodges and one store in Kampala, but demand is high. Through it's sale of cheeses, Kyaninga Dairy will provide KCDC with a sustainable and continuous form of revenue.

Besides providing financial sustainability for KCDC, the dairy project is intended to provide beneficiary families with an income, through employment opportunities in the dairy as we scale up operations, and through selling milk from their own donated goat, and selling the kids that are produced.

In terms of sourcing specialised equipment, we use locally available materials wherever possible. We are currently piloting a project to make equipment in-house, using locally employed craftsmen and locally sourced materials. We have the templates for each piece of equipment already made, including wheelchairs, walking frames, standing frames and seats and we are currently identifying the best materials for each piece. This equipment will not only be available for children accessing KCDC, but will be available for other individuals and organisations.

We run community awareness and assessment days regularly throughout they year in different communities, in partnership with other community organisations, which helps to break down cultural stigmas and beliefs and encourage families to interact with their communities. We also have an annual inclusive sports and family fun day, when all the community is encouraged to attend and celebrate the successes and achievements of all children. This is also a wonderful opportunity to encourage children of all abilities to play together, without fear or exclusion.

We visit children in their homes or in the health centre within their community, so there is no transition back at the age of 17. From whatever age they begin working with us we are always encouraging families to integrate their children into their communities, taking them to church, social events and gatherings, to the local shops. This important so that the child always feels a member of the community and grows up with friends and peers, it is similarly important to encourage parents to enrol their child into school, which can be supported by KCDC training and intervention.

We also work with a great local organisation that runs a vocational school for children with disabilities, currently teaching tailoring and salon skills to young adults with a range of physical and intellectual disabilities, which will provide livelihoods for themselves. KCDC provides consultative support and training to the vocational school so that each student can reach their optimum potential.

Many thanks for your interest and support

Fiona

Photo of Matthew
Team

Very innovative idea, love the holistic community inclusion approach, only way to sustainably remove stigma surrounding disability

Photo of Fiona
Team

Thank you Matthew, we have found many families find our in house approach helps to break down the stigma within their communities. Many people fear the unknown but by visiting homes and communities we can educate and remove fear and replace it with understanding

Photo of embracekulture
Team

Excellent organization, doing great work!

Photo of Rebecca
Team

Love your idea! Definitely a very needed service!