Intervention Training for Parents and Mobile School Program for Children with Neurodevelopmental Disorders (NDD)
CNDI would provide intervention training for parents and develop mobile educational services for children with Neurodevelopmental Disorders
Healthcare Workers Training on Neurodevelopmental Disorders
Physical Therapy Session for Neurodevelopmental Disorder
Children with Neurodevelopmental Disorders and their Mothers at the Child and Adolescent Mental Health Unit of Federal Neuropsychiatric Hospital, Yaba, Lagos (Oshodi Annex), Nigeria.
Educational Information on Childhood Neurodevelopmental Disorders - Continued
Educational Information on Childhood Neurodevelopmental Disorders
What problem does your idea solve?
Many children with neurodevelopmental disorders (NDD) in sub-Saharan Africa do not have access to any form of education as a result of late diagnosis and stigma. Our follow-up project (https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4850395/) involves early screening and provision of interventions that include medical and educational services to children with NDD as reflected in the enclosed preliminary report. We hope to set up mobile school program to meet the objective of educational services.
Explain your idea
Many children with neurodevelopmental disorders (NDD) ranging from autism spectrum disorder, Downs Syndrome to cerebral palsy lack exposure to educational services in Nigeria and other sub-Saharan African countries, either because the parents do not enroll them in normal mainstream schools because of stigma/discrimination or the few enrolled in normal mainstream schools are rejected by the schools' authority because they could not cope in normal classroom settings. Inability to cope in normal classroom settings may be due to inattention and hyperactivity arising from behavioral problems associated with NDD. Many of these children need special education services and one-on-one approach with the teachers, which are lacking in normal mainstream schools. The short and medium term approach is to establish and pilot mobile school program that would consist of teachers trained in special education and developmental psychologists that would visit these children with NDD at their homes with educational materials for about 3 times in a week, spending about 3 hours with each child during each visit. This would provide educational opportunity for these children who are not usually accommodated in mainstream schools. The long term and scale-up approach would be to promote and lobby for passage of educational bills and policies that would encourage establishment of special education facilities within normal mainstream schools to promote community inclusion.
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Children of preschool and school ages with NDD attending the Child and Adolescent Mental Health Center of Federal Neuropsychiatric Hospital, Yaba, Lagos, Nigeria would benefit from this idea. These children would enroll for the Mobile School Program at a special dedicated office at the Child and Adolescent Mental Health Clinic. Special Education Teachers that would be assigned to each child would pay the children visits at their homes for about 3 times in a week to provide teaching services.
Child and Adolescent Mental Health Services Unit of Federal Neuropsychiatric Hospital, Lagos, Nigeria
How is your idea unique?
This idea is unique because there is no similar program ongoing in Nigeria to the best of our knowledge. We believe this program would eliminate the lack of exposure of children with NDD to formal education as it has been observed till date in this environment by:
- Eliminating the lethargy of parents in enrolling their children with NDD in normal mainstream schools because of stigma/discrimination.
- Providing alternative means of educational services to children with NDD rejected in normal mainstream schools because they are not able to cope in a typical classroom setting.
Our follow-up program (http://www.grandchallenges.ca/grantee-star) had recorded success by encouraging more children with NDD to visit the Child and Adolescent Mental Health Center of Federal Neuropsychiatric Hospital, Lagos, Nigeria for medical services ranging from intervention for behavioral problems to physical therapy. Children with NDD visiting this clinic would be enrolled into the program.
Tell us more about you
Childhood Neuropsychiatric Disorders Initiatives (CNDI) is a Non-Profit Organization (http://www.cndinitiatives.org/) with Memberships including Professionals like Psychiatrists, Laboratory Scientists, Accountants, Lawyers, among others who are committed to the objective of the Organization of promoting the physical, social and mental well-being of Children and Adolescents in Nigeria and other parts of Africa. Our Organization had previously partnered with Open Ideo and Ideo.org.
Early Diagnosis and Interventions for Childhood Neurodevelopmental Disorders (NDD) in Nigeria - Education of Primary and Tertiary Healthcare Workers.
What are some of your unanswered questions about the idea?
The Idea would need to engage the services of Special Education Teachers and Developmental Psychologists, who would need remunerations. Sustenance of this idea after initial pilot phase would need the parents of the children with NDD to subscribe and pay a little fee to keep the program running. The program may need to be subsidized for many poor parents to buy in. The long term aim of this project of promoting community inclusion, which consist of holding various stakeholders meetings and lobbying for educational bills and policies that would promote establishment of special education facilities within the normal mainstream schools would take some time to happen. The Mobile School Program would need to continue to fill this time gap.
Where will your idea be implemented?
Experience in Implementation Country(ies)
Yes, for more than one year.
Expertise in Sector
I've worked in a sector related to my idea for more than a year.
We are a registered non-profit, charity, NGO, or community-based organization.
Prototyping: I have done some small tests with prospective users to continue developing my idea.
How has your idea changed based on feedback?
Most (85%) of the parents of children with neurodevelopmental disorders (NDD) engaged expressed the desire to have their children's medical treatments (Behavioral Modification, Medication Prescription/Follow-up and Physical Therapy) incorporated into Home Visits planned for Educational Services. This may require the clinicians to visit the parents and their children at their various homes, with attendant extra costs and time on the part of health team. Some of our Team Members have suggested the idea of training the parents to provide intervention services such as Behavioral Modifications and Physical Therapy at home to their children. Our Special Education Trained Teachers would do home visits, while we would encourage the parents to visit the Child and Adolescent Clinic with their children for purpose of comprehensive clinical evaluation requiring Medications Prescription and Follow-up.
So, our idea now incorporates Intervention Training for Parents.
Who will implement this idea?
Our team at Childhood Neuropsychiatric Disorders Initiatives would implement this idea. We would need to hire 14 Special Education Teachers (12 on Full Time and 2 Experienced on Part Time basis). Three Specialist Clinicians (2 Child Psychiatrists and 1 Pediatrician) would be involved in this Project on Part Time basis. Clinician Trainees, making a total of 10 would be involved on Part Time basis. Two Developmental Psychologists, 6 Nurses and 2 Social Workers would be involved on Part Time basis.
Using a human-centered design approach, you may uncover insights that lead to small or foundational changes to your organization’s existing strategy or processes in order to unlock the potential of your idea. How would your organization go about making such changes?
Big decisions in our Organization are typically made by the Executive Members in accordance with the Constitution of the Organization. Such decisions are often taken to the General Assembly for final ratification. So, both Executive Members and Ordinary Members of the Organization are often involved in buy-in of decisions at the Organization in accordance with the Constitution of the Organization. Some of our Organization's documents, including the Constitution are attached to clarify the response further (See attachments).
What is it that most attracted you to Amplify instead of a more traditional funding model?
Amplify provides avenue for refinement of ideas. Amplify affords opportunity to keep an open mind, a mind set of anything is possible without being judgemental, encouraging and providing room for more experimentation and refinement, unlike the traditional funding model that may limit scope of thoughts and study design. Amplify also employ human centered design principle that incorporates the users, their needs and requirements at all stages of the idea design.
What challenges do your end-users face? (1) What is the biggest challenge that your end-users face on a day-to-day, individual level? (2) What is the biggest systems-level challenge that affects your end-users?
The major day-to-day challenge to the end users (Parents) is both physical and financial burden of caring for their children with neurodevelopmental disorders (NDD), which could be highly overwhelming for the parents. Another source of burden to the parents is the perceived stigma in the society. The perceived stigma on the part of the parents limits the opportunity of the children to get early interventions, including medical and educational services. So, the biggest systems-level challenge that affects the end-users (children with neurodevelopmental disorders) is lack of access, oftentimes to both medical and educational interventions. The lack of access to educational intervention is largely a product of both stigma and inability of the children to fit into typical classroom settings.
Tell us about your vision for this project: (1) share one sentence about the impact you would like to see from this project in five years and (2) what is the biggest question you need to answer to get there?
IMPACT - Our vision for this project in the next five years is for the prototype to spread widely across the country with more children benefiting.
QUESTION - How do we get buy-in of Ministries of Health and Education at Policy and Governmental levels and implement the ultimate policy drive of incorporating Special Education Program into Normal Mainstream Schools, so that more children with neurodevelopmental disorders (NDD) can receive educational intervention in an inclusive environment?
How long have you and your colleagues been working on this idea together?
How many of your team’s paid, full-time staff are currently based in the location where the beneficiaries of your proposed idea live?
Under 5 paid, full-time staff
Is your organization registered in the country you intend to implement your idea in?
We are registered in all countries where we plan to implement.
My organization's operational budget for 2016 was:
If your team/idea/organization has a website, please share the URL below.
Website - http://cndinitiatives.org/
Facebook Page - https://web.facebook.com/ChildhoodNeuropsychiatricDisordersInitiatives/?_rdc=1&_rdr