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Disability Rights, Empowerment, Awareness and Mobility(DREAM).

Our work is focused towards empowering disabled people to exercise their rights, and promoting their full inclusion and active participation

Photo of Fiona Kalinda
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What problem does your idea solve?

1.The community mobilization, advocacy and awareness component of CBRN mobilizes local communities to take responsibility for sustainable rehabilitation of their disabled members. This is done through the establishment of Community Based Rehabilitation Committees (CBRCs) and self help groups at village levels to promote local ownership of the rehabilitation process of disabled members. 2. Referral systems for prosthetic and orthotics centers.3.Support in health financing for self help groups.

Explain your idea

Our idea will address three key areas of need for people with disabilities in Uganda: access to social services; active participation and fully inclusion; and improving the legal and institutional framework. In order to address these areas of need, 3 key objectives have been identified for this project: 1.To increase the access of people with disabilities to rehabilitation services, enabling them to fulfill their basic needs and rights. 2.To enable people with disabilities to participate more actively in all aspects of family and community life. 3.To develop a more inclusive and supportive environment for people with disabilities, through the implementation of a National volunteering policy & voluntary community health Policy and the development of a strong, coordinated disability movement which can represent the rights of people with disabilities at community level in Uganda.

Who benefits?

1.Children with disabilities to access special needs education & rehabilitation services with intended target of 2,740 children with disabilities at age of 1 to 18 years.2.Families of persons with disabilities to access inclusive financial services through self help groups/cooperatives for a secure livelihood,intended target of 1,300 households.3.services providers both government and private(health facilities & private rehabilitation centers).4.3,000 community based working committees

How is your idea unique?

Our idea seeks to (i) build sustainable local capacity of a range of member self help groups,private and public service providers who have a role in supporting people with disabilities, and to ensure that their work reaches a high proportion of the population; and (ii) empower community based rehabilitation committees(CBRC) at village levels & abilities to raise awareness of disability among the public to fight stigma and to lobby decision-makers for necessary changes in social policies to waive taxes on rehabilitation equipment imported to easy mobility for disabled persons in Uganda.(iii) Support in Community health financing for PWDs.(iv) Mapping community volunteers with satellites to know their location & number of cared PWDs. Moving forward, this geo-mapping exercise will help the line ministry to prepare for the integration of CBR volunteers into the formal health system, including the village health teams into human resource management tool of ministry of health in Uganda.

Tell us more about you

Community based rehabilitation national(CBRN) is non government organisation that focuses towards empowering disabled people to exercise their rights, and promoting their full inclusion and active participation as equal members of their families & communities 2-We promote the physical, mental and social well-being of people with disabilities, through strengthening the ability of PWDs to maintain their own health and well-being and assert their right to social services.

What are some of your unanswered questions about the idea?

1.How to Sustain a training programs by volunteers or family after training by a field workers eg. dealing with unwanted behavior among children with disabilities? 2.How to sustain a volunteer program to provide informal education for functional literacy for disabled children who can not be integrated into regular education system. 3.Financial inclusion initiatives for people with disabilities, eg. co-operative with a revolving loan fund to start small businesses. 4.How to implement & finance a voluntary community health insurance to support disabled persons? 5.How a buddy system where a disabled child is matched with a "buddy"who can help the disabled child participate in local event can be aligned to community events? .

Where will your idea be implemented?

  • Uganda

Experience in Implementation Country(ies)

  • Yes, for more than one year.

Expertise in Sector

  • I've worked in a sector related to my idea for more than a year.

Organizational Status

  • We are a registered non-profit, charity, NGO, or community-based organization.

Idea Maturity

  • Early Growth/Roll-out/Scaling: I have completed a pilot and am ready or in the process of expanding.

How has your idea changed based on feedback?

ideas that were gathered focused on, -Priority should be `achieving a national voluntary community health insurance for PWDs in Uganda, through a community based health services approach.(currently Uganda has no health insurance policy in Place since its independence. Accessing quality health services is for the few privileged people). -Continue Building working partnerships with coalition groups, private and public sector in areas of our operation in Uganda to avoid duplication of work. -Development of joint national advocacy strategy, to ensure that CBR programs and social policies, budgets reach out to persons with disabilities in Uganda. -To promote research on key issues affecting persons with disabilities in Uganda. A stronger evidence base will help improve access to social services. -Facilitating a coalition localized process of designing mobility appliances using local materials & community facilities, working procedures of community local information centers.

Who will implement this idea?

A full time project team will be involved in the implementation of this project and it will include, 1.The project Manager.overall responsibility for the day-to-day implementation of the project 2.Finance manager.S/he makes sure that sound financial systems and procedures are followed to ensure effective management of project funds. 3.Monitoring and Evaluation officer,track performance indicators of project activities 4.Four district coordinators,ensure empowerment of PWDs at community level

Using a human-centered design approach, you may uncover insights that lead to small or foundational changes to your organization’s existing strategy or processes in order to unlock the potential of your idea. How would your organization go about making such changes?

The organisations will be working with key partners: (i) community self-help groups (ii) key stakeholders in the disability sector, CSOs & public services that have been involved in the development of this application during the feedback process to ensure that it follows the spirit of their original program, through a series of meetings held, Through their role in implementing and evaluating specific project activities, board members will be actively monitoring this project. In addition, through involvement of project Steering Committee and sub-groups, will also guide the work of the project manager for any changes within project document.The Steering Committee will agree on its terms of reference(TORs) for each project activities or any amendments as requested by the donor.

What is it that most attracted you to Amplify instead of a more traditional funding model?

Its approach to use human-centered design mindsets coupled with social inclusion of persons with disabilities attracted us to Amplify.We believe if Amplify modules are used with our model approaches,people with disabilities will be empowered to have a strong voices resulting into a global disability movement to share learning and best practices.

What challenges do your end-users face? (1) What is the biggest challenge that your end-users face on a day-to-day, individual level? (2) What is the biggest systems-level challenge that affects your end-users?

- Lack of robust social policy research agenda that can be used for evidence gaps to address facets of community health insurance & policies, including human rights and innovation and the interplay of these issues in Uganda; -Lack of credible, legitimate and locally-relevant applied advocacy research that convenes different perspectives on critical issues that affect persons with disabilities in Uganda; - Lack of ability by persons with disability to influence social inclusion policy development at community level in Uganda. - The assistive devices used for mobility purpose is highly taxed when imported and local made are not preferred by persons with disabilities in Uganda because of poor quality. - Lack of collaboration among self help groups& disabled peoples organisations.

Tell us about your vision for this project: (1) share one sentence about the impact you would like to see from this project in five years and (2) what is the biggest question you need to answer to get there?

1.Impact;By 2022,we aim for A better access to community based health and social services for people with disabilities in Uganda,reaching a target of 15,000 PWDs(children,men,women & youth with disabilities) directly using a model of disability rights,empowerment,awareness & mobility (D.R.E.A.M). 2.Question;How do we embrace human-centered design mindset & our D.R.E.A.M models for a Sustainable local movement for up-scaling & sharing best practices among PWDs at national level?

How long have you and your colleagues been working on this idea together?

  • More than 2 years

How many of your team’s paid, full-time staff are currently based in the location where the beneficiaries of your proposed idea live?

  • Between 5-10 paid, full-time staff

Is your organization registered in the country you intend to implement your idea in?

  • We are registered in all countries where we plan to implement.

My organization's operational budget for 2016 was:

  • Between $50,000 and $100,000 USD

If your team/idea/organization has a website, please share the URL below.

1.Being updated(www.cbrn.org)after phasing out.A technical team is working round the clock to see that our website is back on air,shortly. 2.http://www.combra.org/

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4 comments

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Photo of Nancy Wagi
Team

All the best @Fiona

Photo of Fiona Kalinda
Team

Dear Amplify Team & experts,
Thank you for the observation, some of the concerns is captured in our user experience map that will be uploaded shortly.
Our partnership and collaboration is on –going with many (Disable people organizations) DPOs, self help groups,public & private sectors in Uganda. However during our stakeholders mapping and engagement in 2015 conducted in 15 districts of Uganda, it was observed that among the key challenges (extract from CBRN stakeholders mapping report, 2015) –stakeholder Risk analysis. The disadvantage of working in partnership outlined the advantages ones, which included;
-Individual DPOs continue to be constrained by lack of financial resources tend to shy away from partnership and collaboration with key stakeholders because of the scramble for control of their limited funded budgets.
-Lack of DPOs clear objectives, or difficult to agree on common objectives with intending partners & key stakeholders.
-Forming and managing a partnership can be a very timely process that can take away time from working directly on campaign issues and organizational tasks.
-Domination by one powerful organization. Power may not always be distributed equally among members; larger or richer organizations can have more say in decisions.
-May require to compromise position on issues or tactics
-Can be bureaucratic – shared decision-making can be slow and May paralyses program progress.
-Can often be constrained by a lack of resources.
-Potential for donor interference (e.g. a donor is interested in funding certain activities but there is a danger of planning activities only because you know you can get the funds).
All the DPOs you mentioned here have their own autonomous status and usually we partner if need arise to implement a certain programs or projects.
The CBR program when it started in Uganda way back in 80s/90s our organization community based rehabilitation national(CBRN) was a key to CBR programs in Uganda.The ministry of gender, labour & social development also was instrumental in CBR programs in 2002 in Uganda though with limited resources for CBR program sustainability and scaling up approaches. Our organization (CBRN) preferred and supported the approach of using local materials and local raised funds to sustain CBR Program, rather than the ministry of gender & labour approach of relying on donor dependence.
As an independent NGO we had to device way and different strategies by applying comprehensive CBR models for social inclusion of people with disabilities in Uganda. (Ref to our user experience map).
Dr.Fiona Kalinda and CBRN team

Photo of OpenIDEO
Team

Hi Fiona, one last little item, don't forget to publish your idea so others can see the great work you are doing!

Photo of OpenIDEO
Team

Hi Fiona Kalinda and Team,

We’re excited to share with you feedback and questions from the Amplify team and an external set of experts. We encourage you to think about this feedback as you continue to improve and refine your idea. You are welcome to respond in the comments section and/or to incorporate feedback into the text of your idea. Your idea and all associated comments will all be reviewed during the final review process.

-The idea to increase participation and inclusion of people with disabilities is a needed and valuable idea.
-It seems as if user buy-in may be critical to success of increasing participation and inclusion for people with disabilities
-Have you considered partnership with organizations of persons with disabilities, such as National Union of Disabled Persons of Uganda (NUDIPU), SIA, UNAD or any of their district memberships? There are also organizations of women with disabilities, such as NUWODU and IDIWA working on gender.
-Have you considered CBR programs in Uganda for existing gaps? For example: http://www.mglsd.go.ug/programmes/community-rehabilitation-programme-for-the-disabled.html

In case you missed it, check out this Storytelling Toolkit for inspiration for crafting strong and compelling stories: http://ideo.to/DXld5g Storytelling is an incredibly useful tool to articulate an idea and make it come to life for those reading it. Don’t forget - June 4 at 11:59PM PST is your last day to make changes to your idea on the OpenIDEO platform.

Have questions? Email us at amplify@ideo.org

Looking forward to reading more!