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Supporting people living with rheumatic diseases

We have synthesized up-to-date and science-based information for people living with various rheumatic diseases.

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All CAPA Board members live with different types of rheumatic disease and we know the COVID-19 pandemic is causing a lot of stress and anxiety for our community. To help, we have developed a list of evidence-based resources so our community can stay up to date on the latest news and find answers to questions. It is changing by the day, with our medication supply at risk (e.g. Trump announcement about Hydroxychloroquine, pharmacies only dispensing 30-day supplies of medications we need to live our lives, etc.) We are updating this information regularly as the situation is changing quickly. 

Upload or share a link to this resource/message/source of information to share it with others.

http://arthritispatient.ca/covid-19-information-resources/

Did this resource motivate you to change your behaviors?

  • Yes

In what ways did you change your behaviors as a result of this resource?

Reduces my stress and anxiety, gives me information to empower to make better decisions, creates a sense of community

Did you share this information with your network?

  • Yes

In what ways did you share this information?

We posted the information on our website and through different social media platforms (Twitter and Facebook).

Where are you getting information around COVID-19?

  • Local Government
  • National Government
  • News: Digital
  • Social Media
  • WHO (World Health Organization)
  • Word of Mouth
  • Employer

What information do you feel you are missing about COVID-19?

The problem is there is TOO much information in my opinion.

What populations or personas are not currently being addressed with today’s COVID-19 information?

The needs of people with disabilities generally speaking - many people with rheumatic conditions identify as having a disability and have mobility issues and problems in participating in daily activities.

What is your current profession?

Volunteer Board member with an NGO

In what city are you located?

Ottawa

In what country are you located?

Canada

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