My son said to me, "Mom, why don't you take this ugly story that has happened (his dad/my husband getting sick) and turn it into something beautiful". When I wrote 12 Tiny Well-being Tips for Caregivers, I was sitting at our kitchen table with a large pad of paper in front of me. Every idea that flowed onto that paper was therapeutic and felt as if it was pre-determined. It came from a place that was fierce... a place of knowing. Once I started, I knew that I had to write it. It was on my mind all of the time. It took me about 6 weeks and it was finished. I started with our story (my husband's diagnosis of BVFTD and the chaos I fell into) followed by the 12 Tiny Tips. Each page is simple, handwritten and drawn out. There are coloring pages and affirmations. There is a permission slip designed to help caregivers let go of stress as well as many other hands on self-help exercises.
My idea is to eventually have a book in every caregiver's home, which means that I'll have to print more. My idea is to travel, speak about our story, create awareness about the challenges caregiver's face and hug as many as possible.
I also plan to create another visual book, compassion cards designed to encourage treating one another with compassion & kindness and an organizer specifically for caregivers.
My husband and I live in a motorhome and have begun our journey - creating exposure for my book, telling our story, offering awareness about FTD and hugging caregivers. I plan to blog about our adventures.