"I have a penchant for research, a scientific curiosity about everything… not this. I was NEVER curious about this kind of thing. Oh, I’ve researched it, this disease. I have binders of information, websites bookmarked and yet NOTHING prepares a person for this stuff. It just doesn’t." ~ CatKBorn in her blog post, Stickiness, published on CareGiving.com on October 27, 2017.
Family caregivers heal from sharing their experiences to a community that understands. In addition, they learn from each other because they're the ones living it and doing it.
Caregiving takes more than an emotional toll. According to a Caring.com survey of more than 2,700 family caregivers between late August and mid-September:
• 18% of those surveyed said they spend between $5,000 and $9,999 per year
• 10% spend $10,000 to $19,999 a year and 6% spend $50,000 or more Caring.com found.
Why not reimburse family caregivers for the content they create?
On CareGiving.com, family caregivers write blog posts. In addition, one of our members, Sharon Hall, hosts a monthly podcast, Talking FTD with Geri, for family caregivers of persons with FTD. Sharon cares for her husband, diagnosed with FTD in the fall of 2015, and her mother. Sharon also hosts our weekly FTD chat on CareGiving.com.
In addition, we added a dementia care tract to our Second Annual National Caregiving Conference. Many of the presenters and panelists participating in the dementia care tract currently care for a family member with dementia. You can view our dementia care track here.
Family caregivers create a community of support when they write blog posts, host podcasts and video chats, and present at a conference. Even better: They can continue to manage their caregiving responsibilities and their lives when they receive reimbursement for the content they create.
We have the infrastructure to build on our existing blog posts, podcasts, video chats, chats and conferences to enhance our community that conveniently connects a family caregiver with the best resource available -- another family caregiver.
With your support, we can build upon what already exists and begin to pay family caregivers for the invaluable content they create.