Together We Heal Forum
Global forum to create a safe place for members of the AD community who are recovering from Topical Steroid Withdrawal Syndrome.
Please elaborate on your proposed solution to the challenge in no more than 300 words.
Chronic skin conditions can't be hidden, and the people who live with it know firsthand the true struggle of heading out into the world each day attempting to feel normal. While many dealing with AD have endured a lifelong struggle with flaky, itchy, red, and super sensitive skin, we don't always show the parts that make living with this condition the most difficult. It is lonely, exhausting, isolating and defeating to struggle with Atopic Dermatitis. And when you experience a little known complication such as Topical Steroid Withdrawal Syndrome related to AD treatment, the emotional and physical agony is only amplified. Sufferers often lose support of family members as well as medical professionals. It is a lonely uphill battle. At ITSAN, we have found that while our community members need medical support and advisement, they also seek a sense of belonging and connection. Through this grant, it is our hope to establish a dedicated online forum to reduce isolation and increase opportunities for members to engage with others who have faced similar struggles. It would be a place for a parent up in the middle of the night to read about another parent's success caring for their child, or for an individual to pose questions about their experience without having to travel many miles to share these conversations in person. The forum would also house educational resources and become a beacon of light and connection that our members deserve!
What is the name of your organization?
ITSAN (International Topical Steroid Awareness Network)
Where are you and your organization based?
Prosperity Farms, Florida
Please provide a description of your organization.
ITSAN is a non-profit organization established in 2012 as a grass-roots advocacy group to support members who have endured skin conditions such as Atopic Dermatitis and utilized topical steroids as a line of treatment. Through the application of topical steroids, the members of ITSAN have sustained a worsening condition than originally diagnosed, called Topical Steroid Withdrawal Syndrome. The mission is to provide ongoing awareness and education about this condition as well as a support forum
What is your name?
Molly Evans, Board Member