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Breaking paradigms: myths and truths in Atopic dermatitis

Educate patients in an integral way. That is the basis of the treatment, starting from solving doubts about myths and truths in AD

Photo of Claudia Arenas
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Please elaborate on your proposed solution to the challenge in no more than 300 words.

My proposal is to create a web page, a Spanish-speaking community initially, that includes blogs where all the doubts of the patients about their disease can be solved through informative videos made by specialists in the area (dermatologists, pediatric dermatologists, social work , psychology and allergology), and also evaluate the impact on the quality of life through scales (DLQI, POEM, HADS) that will be available on the page and parameterized to assess the risk of these patients according to their score and also suggest and make timely interventions.

What is the name of your organization?

Claudia marcela arenas soto vicepresident of the Colombian association of dermatology and dermatological surgery

Where are you and your organization based?

Bogota, colombia

Please provide a description of your organization.

I coordinate and conduct educational workshops for patients about myths and truths in AD with free dermatological assessment and social work sessions. Participate in the development of national DA guidelines. I am leading and developing a DA application for dermatologists Develop an Immunoderm application for health professionals that includes risk management indicators to minimize complications in patients who require immunomodulting and immunosuppressive treatment.

What is your name?

Claudia marcela arenas soto

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Photo of Susan Jackewicz
Team

Hello @Claudia Arenas
My name is Susan and I’ve been an Innovation Coach on the OpenIDEO platform. Thank you for posting your idea, particularly as a professional who works with this patient population as part of your practice. I’m wondering if you might clarify a couple of points to help with understanding your idea?
You aim to break paradigms by first educating patients online via blogs/videos sourced from appropriate people in the medical community. Then, you want to use Quality of Life scales to assess patient risk once they’ve been educated via the videos? The thirdly, you want to use the outcomes to help develop national AD guidelines. Please correct me if I’ve misunderstood anything! Thank you!

Photo of Claudia Soto
Team

Hi Susan Jackewicz 
Thank you very much for reviewing my proposal.
In Colombia I do educational workshops for patients of myths and truths in atopic dermatitis and I see the need to clarify all these doubts and be able to socialize them. because the basis of treatment is in patient and family education.
I would like to develop an App that includes generalities of the disease and videos answering all these questions that frequently ask me in these workshops and within this APP also introduce scales of measurement of quality of life such as DLQI, POEM and HADS that are filled out by patients to assess the risk they have of anxiety and depression and thus be able to suggest and perform timely interventions in patients with suicidal risk, especially those with severe atopic dermatitis that impacts both the quality of life

Photo of Susan Jackewicz
Team

Hi. @Claudia Soto
Thank you for your clarification. In doing research for this Challenge, I see there are a number of apps now available for AD patients, some designed for adults, and some for children. For example: https://www.adrescuewear.com/blog/mobile-apps-for-people-with-eczema/. Your app idea seems very targeted - can you tell us how it might be different from these - maybe in its specific approach? Or different in how you intend to use it within the community? Also, do you think having two versions for your app...one for children, one for adults...would be helpful? Thank you for taking the time to answer.
Kindly, Susan

Photo of Claudia Arenas
Team

cordial greetings Sussan, my idea is to make an application (APP) much more friendly with videos where dermatologists experts in atopic dermatitis answer several questions that I have collected from the groups of patients with atopic dermatitis and my conferencies, within the community I plan to disseminate and publicize the application in the social network groups of atopic dermatitis, also through my lectures, through the scientific associations of dermatology and pediatrics mainly, it would be a single version for adolescents, adults and caregivers because I have realized that finally who is interested and worries about the disease in the pediatric population are their caregivers.
within the APP will include scales of evaluation of quality of life for patients as many of them are at risk of suicide and can be identified with their responses in this type of scales to be able to make timely interventions

Photo of Susan Jackewicz
Team

Hi @Claudia Arenas
Thank you for your answer. You bring up a very good point, focusing on the caregivers, their concerns as family members, whether caring for children or adults, and giving them a mechanism to help assess quality of life. Just curious, will interventions suggested range in scale according to what the sufferer is experiencing, or will there just be a flag for most serious symptoms? Thank you!

Photo of Claudia Soto
Team

hi Susan Jackewicz 
The signal for the most severe symptoms is according to the evaluation scales HADs, DLQI and POEM. These allow to assess the negative impact of the disease in this way, timely interventions can be made.

Photo of Susan Jackewicz
Team

Thanks, Claudia, for your explanation!

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