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Early screening of Children with Atopic dermatitis and interventions

The specific objectives will be to recognize atopic dermatitis among children attending immunization clinics.

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Please elaborate on your proposed solution to the challenge in no more than 300 words.

The project will introduce screening for children with atopic dermatitis into already existing immunization clinics at primary health care level in Local Government Areas (LGAs) of Monduli, Tanzania. For those children who will be screened positive for AD at any point during their visits to immunization Clinic, baseline assessment and interventions will be provided, the children will then be followed up every three (3) months for further evaluation to see if positive results are being achieved to children and possible review of intervention plans, if necessary. The interventions for identified children would include a combination of pharmacotherapy and psychotherapy. The intervention will address the visible symptoms of AD that can have a significant impact on the emotional and psychosocial well-being of the children living with AD. Also the interventions for the children include offering of health related advice based on clinical evaluation of each child. The interventions at this level will also include educating parents about what it means to live with AD,and helping parents to address misconceptions, misinformation and bullying that are often associated with AD and share experiences about AD, counseling and support for the family by establishment of Family Support Groups where parents can share their apprehension and concerns so as to learning more on techniques about living with AD including building their self esteem against bullying.

What is the name of your organization?

JAMII LIGHT UP is non profit organization.Our mission is to provide the support (by quality information, emotional, financial,...) to AD patients and their close ones. Also we wanna raise awearnes, improve doctor-patient comunication, and help them with other everyday challenges

Where are you and your organization based?

MONDULI ARUSHA TANZANIA

Please provide a description of your organization.

Jamii light up is non profit organization.Our mission is to provide the support (by quality information, emotional, financial,...) to AD patients and their close ones. Also we wanna raise awearnes, improve doctor-patient comunication, and help them with other everyday challenges

What is your name?

Innocent temba: I am a qualified Health information officer, 5 years of managing health information, 4 in low-income areas.. I graduated Master of health information management . I studied sociology of bullying and found that, from cognitive perspective, low self-esteem and lack of collaborative work are its main causes that cant be successful mitigated by discursive methods alone. My young brother experienced a soft form of AD.

Tell us about your organization, or the organization you are partnering with: What inspired you to participate in this Challenge (300 words or less)?

JAMII LIGHT UP is non profit organization.Our mission is to provide the support (by quality information, emotional, financial,...) to AD patients and their close ones.We are inspired to eliminate bullying around AD as health crisis in Monduli Arusha Tanzania. We are working collaboratively for solutions. We believe that the ultimate solution to the bullying around AD must include many stakeholders who will all gain from improved patient outcomes. We have learned that people learn best with they have personal interactions with their peers and can apply knowledge to their particular situation. Our programs help people act. We provide children and parent with tools and practices that promote self-confidence, resilience, and self-sufficiency in fight bullying regarding AD and to foster hope, happiness, and well-being in children’s lives.Offering these parents and their children a space in which to learn about and cultivate kindness, respect, diversity, and ensures they develop the fundamental life skills and social-emotional competencies needed to fight bullying regarding AD.we meet children and their parents at their capability level to build their self-confidence and self-awareness in fighting bullying regarding AD. We ENGAGE COMMUNITIES DIRECTLY: We will engage with communities and accompany them on a learning journey based to learning techniques to build self esteem to fight bullying regarding AD.

Building on your initial proposal in the Ideas Phase, please share additional information on your solution to the challenge in more detail (500 words or less).

We are locally focused in hard to reach villages and ward level immunization clinics which are existed in primary health care system in Local Government Areas (LGAs) of Monduli, Tanzania to screening children with dermatitis and for those who will be identified with AD at any point during their visits to immunization Clinic, baseline assessment and interventions will be provided, the children will then be followed up every three (3) months for further evaluation to see if positive results are being achieved to children and possible review of intervention plans, if necessary. The interventions for identified children would include a combination of pharmacotherapy and psychotherapy. The intervention will address the visible symptoms of AD that can have a significant impact on the emotional and psychosocial well-being of the children living with AD. Also the interventions for the children include offering of health related advice based on clinical evaluation of each child. We works within existing primary healthcare systems in selected local government areas in Monduli Arusha Tanzania with focus both in screen children with AD and provide family education that will help children to lessen the impact of bullying around AD. As a public health expert, I believe that cultural stigma and distress around dermatitis is behind this barrier to care. I have spoken to hundreds of children and their parent who feel that admitting anxiety or bullying and depression is the same as admitting a weakness. They fear that if they speak about these feelings out loud, it will make their problems more real. By saying, "I feel well," even when they’re suffering, what they really mean is "I'm a good children and I don't want to be labelled as a failure.” Public health initiatives are needed to educate that anxiety, bullying and depression have nothing to do with children having dermatitis. I believe that the best way to do this is by entering the cultural conversation about dermatitis, to destigmatize narratives of distress. We will educate parents what it means to live with AD, and helping parents to address misconceptions, misinformation and bullying that are often associated with AD and share experiences about AD, counseling and support for the family by establishment of Family Support Groups where parents can share their apprehension and concerns so as as to learning more on techniques about living with AD including building their self esteem against bullying. Each family group will have one community health worker who will advise and share techniques with parent to fight bullying regarding AD . We will address the lack of children-friendly information on dermatitis. Most information is written for dermatitis reinforces stigma, bullying and depression around children and their families. By working with parents to create a dermatitis toolkit, will increase understanding of AD, help break social stigma, and put a stop to bullying faced by people with AD.

Please share more information on the steps you’ll take to make sure the project is a success (500 words or less).

Phase 1: Preparation and planning (1.5 Months): I. Selection of Immunization clinics and team recruitment II. Consultation with selected beneficiaries. III. Collection of baseline data needs. IV. Meeting and briefing with potential beneficiaries. Phase 2: Design of training guideline/manual about A.D (1.5month). We will design training guideline/Manual for educate parents, community health workers about techniques to fight stigma, depression, and bullying regarding AD. Phase 3: Field project Implementation :( 7 month) I. Starting screen children with AD in selected immunization clinics. II. Follow up for children with dermatitis for further evaluation to see if positive results are being achieved offering of health related advice based on clinical evaluation of each child. III. Establishment of Family Support Groups where parents can share their apprehension and concerns about AD. IV. Establishment of education session in immunization clinics to educating parents about what it means to live with AD, to learn more techniques to fight stigma, depression and bullying regarding AD. V. Plan facebook streaming for sharing stories about AD, techniques to fight stigma, depression and bullying regarding AD. VI. Plan additional social media outreach to engage large patient network around the world for participation VII. Engaging with new additional influencers to expand outreach and project positive images of stigmatized stories. VIII. Prepare toolkit with right information about AD. IX. Establishment network of dermatitis Ambassadors who will bring our message to schools. We will meet monthly, share ideas, inspire each other and drive our mission forward. X. We will host regional summits and possibly a national summit bring together children with AD and their parent to meet in person once a year to share ideas, active sessions and presentations regarding fight bullying about AD. XI. We will create Facing Stigma gallery around AD. We will exhibit in display at Arusha Gallery and we will travel to different community spaces. XII. We are also hoping to create a book about fight bullying with AD and put it online to be used in health curricula in community, schools moving forward. Phase 4: Measuring the impact to know if the idea meets the unmet needs. 2 month I. We will develop an evaluation framework with partner immunization clinic and the communities. (2 months) II. Qualitative Assessment with surveys and interviews on children, community health workes and parents at the start, mid-way and end of the 3 month program. III. We will use community feedback forums/focus groups for qualitative data. IV. We will use all findings to inform our Continuous Improvement plan. V. We will design a psychometric scale measuring learning progress, empathy capacity, stress, creative collaboration, and problem-solving. VI. Staff report weekly to assess challenges, insights, and updates. VII. Final Evaluation report.

How is your idea scalable (300 words or less)?

We deeply believe in the power of community, so we will host a variety of community-wide events that offer a platform for children to be screened with AD, to learning more techniques about living with the disease including building self-esteem against bullying might be more on the minds of families and to be honest and open about their dermatitis struggles. We bringing people together to talk about dermatitis and work toward smashing the journey of stigma, depression, bullying, and suicide loss, self-harm and finding hope. We will mobilize an active network of dermatitis Ambassadors who will bring our message to schools. We will meet monthly, share ideas, inspire each other and drive our mission forward. This project will start local, but will include and engage a broad and diverse population by soliciting education program to larger patient network around the world through national and international social media base on Instagram. After provide education to local parents in Monduli, this education program around AD will be broadcast on facebook stream to reach a larger number of patient networks around the world.We would love to host regional summits and possibly a national summit bring together children with AD and their parent to meet in person once a year to share ideas, active sessions and presentations. We will create facing Stigma gallery around AD. We will exhibit in display at Arusha Gallery and we will travel to different community spaces. We are also hoping to create a book about fight bullying with AD and put it online to be used in health curricula in community, schools moving forward.Eventually, our hope is to partner with larger social media communities to host additional online program for educating parents about what it means to live with AD.

How would you know if your idea worked and how would you measure it (500 words or less)?

We feel this idea will work because we already have relationships with the immunization clinics where we plan to screen children with AD and provide education to the parent to learn more techniques for fight stigma, depression and bullying and building their self esteem around AD. We have been recognized by local government authority of Monduli Arusha Tanzania for our contribution to the health and wellbeing of the children, and therefore feel that these new programs are a natural next step. Our pre-existing relationships with the immunization clinics and the community make us uniquely qualified to screen children with AD and provide education to the parent to learn more techniques for fight stigma, depression and bullying with AD. Our existing relationship with the immunization clinics, and past successes in the community place is a unique position to carry out this project, and have room to expand. These immunization clinics are extremely supportive of the work that we do. We will know if the project has helped address an unmet need by measuring the impact of this idea by develop an evaluation framework with our partner immunization clinic and the communities. We will use qualitative and quantitative data from our project for example number of children screen, Number participants interested, number recruited, number enrolled, percentage completed training, number of client requests, number of clients served, demographics of participants and of clients served, outcomes of clients served, number of community based organizations participating. Qualitative Assessment with surveys and interviews on children, community health workes and parents at the start, mid-way and end of the 3 month program. Qualitative methods such surveys and focus group discussions with recipients and the broader community will assess progress. We will use community feedback forums/focus groups for qualitative data e.g, shift in gender norms/attitudes; and work with schools/learning centres to measure girls' attendance. We will use all findings to inform our Continuous Improvement plan. We will design a psychometric scale measuring learning progress, empathy capacity, stress, creative collaboration, and problem-solving. Staff report weekly to assess challenges, insights, and updates. Also we will know if our idea worked by reducing stigma anxiety,and depression among children with dermatitis,Decreasing the burden of bullying faced by children with dermatitis and systems and Improving the children and parents experience in fight against bullying regarding AD.

During the Ideas Phase, you estimated how much your project will cost. Please update if this estimate has changed?

  • $7,000 - 9,999

Please share more information on how the grant funding will be used to bring your idea to life. Please provide an itemized budget. (500 words or less)

Phase 1. We will use 999 USD to do the following I. Selection of Immunization clinics and team recruitment II. Consultation with selected beneficiaries. III. Collection of baseline data needs. IV. Meeting and briefing with potential beneficiaries. Phase 2: We will use 1000 USD to do the following. We will design training guideline/Manual for educate parents, community health workers about techniques to fight stigma, depression, and bullying regarding AD. Phase 3: We will 7000 USD to do the following I. Starting screen children with AD in selected immunization clinics. II. Follow up for children with dermatitis for further evaluation to see if positive results are being achieved offering of health related advice based on clinical evaluation of each child. III. Establishment of Family Support Groups where parents can share their apprehension and concerns about AD. IV. Establishment of education session in immunization clinics to educating parents about what it means to live with AD, to learn more techniques to fight stigma, depression and bullying regarding AD. V. Plan facebook streaming for sharing stories about AD, techniques to fight stigma, depression and bullying regarding AD. VI. Plan additional social media outreach to engage large patient network around the world for participation VII. Engaging with new additional influencers to expand outreach and project positive images of stigmatized stories. VIII. Prepare toolkit with right information about AD. IX. Establishment network of dermatitis Ambassadors who will bring our message to schools. We will meet monthly, share ideas, inspire each other and drive our mission forward. X. We will host regional summits and possibly a national summit bring together children with AD and their parent to meet in person once a year to share ideas, active sessions and presentations regarding fight bullying about AD. XI. We will create Facing Stigma gallery around AD. We will exhibit in display at Arusha Gallery and we will travel to different community spaces. XII. We are also hoping to create a book about fight bullying with AD and put it online to be used in health curricula in community, schools moving forward. Phase 4: We will use 1000 to do the following. I. We will develop an evaluation framework with our partner immunization clinic and the communities. (2 months) II. Qualitative Assessment with surveys and interviews on children, community health workes and parents at the start, mid-way and end of the 3 month program. III. We will conduct community feedback forums/focus groups for qualitative data. IV. We will use all findings to inform our Continuous Improvement plan. V. We will design a psychometric scale measuring learning progress, empathy capacity, stress, creative collaboration, and problem-solving. VI. We will prepare Staff report weekly to assess challenges, insights, and updates. VII. Final Evaluation report submission

If available, share prototypes, images, sketches of how you created your idea, including a timeline of how your idea will roll out (optional).

Because of existing infrastructure around our Project of screen children with AD, We will start by collaborating with existing immunization clinics in Monduli Arusha Tanzania to screen children with AD and provide Family education to the parents and children so as to fight Bullying regarding AD . Our project will have 4 Phase 1: Preparation and planning (1.5 Months): I. Selection of Immunization clinics and team recruitment II. Consultation with selected beneficiaries. III. Collection of baseline data needs. IV. Meeting and briefing with potential beneficiaries. Phase 2: Design of training guideline/manual about A.D (1.5month). We will design training guideline/Manual for educate parents, community health workers about techniques to fight stigma, depression, and bullying regarding AD. Phase 3: Field project Implementation :( 7 month) I. Starting screen children with AD in selected immunization clinics. II. Follow up for children with dermatitis for further evaluation to see if positive results are being achieved offering of health related advice based on clinical evaluation of each child. III. Establishment of Family Support Groups where parents can share their apprehension and concerns about AD. IV. Establishment of education session in immunization clinics to educating parents about what it means to live with AD, to learn more techniques to fight stigma, depression and bullying regarding AD. V. Plan facebook streaming for sharing stories about AD, techniques to fight stigma, depression and bullying regarding AD. VI. Plan additional social media outreach to engage large patient network around the world for participation VII. Engaging with new additional influencers to expand outreach and project positive images of stigmatized stories. VIII. Prepare toolkit with right information about AD. IX. Establishment network of dermatitis Ambassadors who will bring our message to schools. We will meet monthly, share ideas, inspire each other and drive our mission forward. X. We will host regional summits and possibly a national summit bring together children with AD and their parent to meet in person once a year to share ideas, active sessions and presentations regarding fight bullying about AD. XI. We will create Facing Stigma gallery around AD. We will exhibit in display at Arusha Gallery and we will travel to different community spaces. XII. We are also hoping to create a book about fight bullying with AD and put it online to be used in health curricula in community, schools moving forward. Phase 4: Measuring the impact to know if the idea meets the unmet needs. 2 month I. We will develop an evaluation framework with partner immunization clinic and the communities. (2 months) II. Qualitative Assessment with surveys and interviews on children, community health workes and parents at the start, mid-way and end of the 3 month program. III. We will use community feedback forums/focus groups for qualitative dat

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Photo of Innocent Temba
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Hello susan Jackewicz,
Thank you for your comments, of course,
We are locally focused in hard to reach villages and ward level immunization clinics which are existed in primary health care system in Local Government Areas (LGAs) of Monduli, Tanzania. We will screening children with dermatitis and for those who will be identified with AD at any point during their visits to immunization Clinic, baseline assessment and interventions will be provided, the children will then be followed up every three (3) months for further evaluation to see if positive results are being achieved to children and possible review of intervention plans, if necessary. The interventions for identified children would include a combination of pharmacotherapy and psychotherapy. The intervention will address the visible symptoms of AD that can have a significant impact on the emotional and psychosocial well-being of the children living with AD. Also the interventions for the children include offering of health related advice based on clinical evaluation of each child.
We works within existing primary healthcare systems in selected local government areas in Monduli Arusha Tanzania with focus much in family education that will help children to lessen the impact of bullying around AD. As a public health expert, I believe that cultural stigma and distress around dermatitis is behind this barrier to care. I have spoken to hundreds of children and their parent who feel that admitting anxiety or bullying and depression is the same as admitting a weakness. They fear that if they speak about these feelings out loud, it will make their problems more real. By saying, "I feel well," even when they’re suffering, what they really mean is "I'm a good children and I don't want to be labelled as a failure.” Public health initiatives are needed to educate that anxiety, bullying and depression have nothing to do with children having dermatitis. I believe that the best way to do this is by entering the cultural conversation about dermatitis, to destigmatize narratives of distress.
We will also educating parents about what it means to live with AD, and helping parents to address misconceptions, misinformation and bullying that are often associated with AD and share experiences about AD, counselling and support for the family by establishment of Family Support Groups where parents can share their apprehension and concerns before referral to tertiary care centre for further evaluation and specific interventions as required by identified children with AD.
First, we will deliver knowledge and services to children and their families house hold level thereby eliminating stigma, depression, bullying and geographic barriers to access treatments regarding dermatitis. Second, our community health workers will combine trusted, traditional networks with modern, evidence-based healthcare practices, to provide individualized education about healthy practices regarding to dermatitis. By working within traditional networks, children and their families will receive culturally-appropriate information that will reduce stigma and improve children and their family health outcomes.
Furthermore, with a human-centered design mindset we will providing parents with the tools, resources and support to identify and educate themselves on the most relevant dermatitis topics, which will help them, reclaim agency over their children bodies in a safe way and navigate the challenges of their complex environments. Providing a platform for parents in Monduli arusha to identify and articulate the dermatitis information they need to lead safe, dignified and empower their children lives.We empower Children with dermatitis and their families have access to treatment, participate fully in society, and are able to care for themselves and their families.
We will address the lack of children-friendly information on dermatitis. Most information is written for dermatitis reinforces stigma, bullying and depression around children and their families. By working with parents to create a dermatitis toolkit, we will empower parents to take the lead in conceiving, organizing and sharing dermatitis information with peers.
Finally we will focus in empowering parents on learning more techniques about living with the disease including building self-esteem against bullying might be more on the minds of families. However in critical complication of dermatitis we will give children identified with AD the related healthcare advise such as to seek referrals to near by health centre along with teaching techniques about living with the disease including building self-esteem against bullying might be more on the minds of families
Thank you!
Kind regards,
Innocent Temba.

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